Carter Alix J E, Arab Marianne, Harrison Michelle, Goldstein Judah, Stewart Barbara, Lecours Mireille, Sullivan James, Villard Carolyn, Crowell Wilma, Houde Katherine, Jensen Jan L, Downer Kathryn, Pereira Jose
Emergency Health Services, Halifax, NS.
Department of Emergency Medicine, Division of Emergency Medical Services, Dalhousie University, Halifax, NS.
CJEM. 2019 Jul;21(4):513-522. doi: 10.1017/cem.2018.497. Epub 2019 Feb 11.
Paramedics Providing Palliative Care at Home was launched in two provinces, including a new clinical practice guideline, database, and paramedic training. The aim of this study was to evaluate patient/family satisfaction and paramedic comfort and confidence.
In Part A, we gathered perspectives of patients/families via surveys mailed at enrolment and telephone interviews after an encounter. Responses were reported descriptively and by thematic analysis. In Part B, we surveyed paramedics online pre- and 18 months post-launch. Comfort and confidence were scored on a 4-point Likert scale, and attitudes on a 7-point Likert scale, reported as the median (interquartile range [IQR]); analysis with Wilcoxon ranked sum/thematic analysis of free text.
In Part A, 67/255 (30%) enrolment surveys were returned. Three themes emerged: fulfilling wishes, peace of mind, and feeling prepared for emergencies. In 18 post-encounter interviews, four themes emerged: 24/7 availability, paramedic professionalism and compassion, symptom relief, and a plea for program continuation. Thematic saturation was reached with little divergence. In Part B, 235/1255 (18.9%) pre- and 267 (21.3%) post-surveys were completed. Comfort with providing palliative care without transport improved post launch (p = < 0.001) as did confidence in palliative care without transport (p = < 0.001). Respondents strongly agreed that all paramedics should be able to provide basic palliative care.
After implementation of the multifaceted Paramedics Providing Palliative Care at Home Program, paramedics describe palliative care as important and rewarding. The program resulted in high patient/family satisfaction; simply registering provides peace of mind. After an encounter, families particularly noted the compassion and professionalism of the paramedics.
“在家中提供姑息治疗的护理人员”项目在两个省份启动,包括一项新的临床实践指南、数据库和护理人员培训。本研究的目的是评估患者/家属的满意度以及护理人员的舒适度和信心。
在A部分,我们通过在登记时邮寄调查问卷以及在接触后进行电话访谈来收集患者/家属的观点。对回复进行描述性报告并通过主题分析。在B部分,我们在项目启动前和启动后18个月对护理人员进行在线调查。舒适度和信心采用4分李克特量表评分,态度采用7分李克特量表评分,报告为中位数(四分位间距[IQR]);采用威尔科克森秩和检验/自由文本主题分析。
在A部分,共返回67/255份(30%)登记调查问卷。出现了三个主题:实现愿望、安心以及为紧急情况做好准备。在18次接触后访谈中,出现了四个主题:全天候可用、护理人员的专业精神和同情心、症状缓解以及对项目延续的请求。几乎没有分歧就达到了主题饱和。在B部分,完成了235/1255份(18.9%)启动前调查问卷和267份(21.3%)启动后调查问卷。在不进行转运的情况下提供姑息治疗的舒适度在项目启动后有所提高(p = <0.001),在不进行转运的情况下提供姑息治疗的信心也有所提高(p = <0.001)。受访者强烈同意所有护理人员都应能够提供基本的姑息治疗。
在实施多方面的“在家中提供姑息治疗的护理人员”项目后,护理人员将姑息治疗描述为重要且有意义的。该项目使患者/家属满意度很高;仅仅登记就能让人安心。在接触后,家属特别提到了护理人员的同情心和专业精神。