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自闭症谱系障碍成年人医疗保健可及性的差异:一项系统评价方案

The disparities of healthcare access for adults with autism spectrum disorder: Protocol for a systematic review.

作者信息

Calleja Shenae, Islam Fakir M Amirul, Kingsley Jonathan, McDonald Rachael

机构信息

Faculty of Health, Arts and Design, Swinburne University of Technology, Hawthorn.

School of Population and Global Health, University of Melbourne, Carlton, Victoria, Australia.

出版信息

Medicine (Baltimore). 2019 Feb;98(7):e14480. doi: 10.1097/MD.0000000000014480.

DOI:10.1097/MD.0000000000014480
PMID:30762771
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6408059/
Abstract

INTRODUCTION

Adults living with autism spectrum disorder (ASD) can experience many factors that may impact their everyday lives. Striving for optimal health and enduring a healthy lifestyle comes with the ability to access appropriate healthcare services, yet adults with ASD have unmet healthcare needs. The barriers and enablers of healthcare access for adults with ASD remain unclear. We will conduct a systematic review to explore what is currently known about healthcare access for adults with ASD, this will determine the level and appropriateness of access to healthcare services to better support the lives of adults with ASD.

METHOD AND ANALYSIS

The systematic review will report on all studies that include quantitative, qualitative, and mixed-methods designs that consider healthcare access for adults with ASD. We will search 5 databases: EBSCOhost, Scopus, PubMed, the Cochrane Library, and Web of Science. The Mixed Methods Appraisal Tool (MMAT) will be used to assess quality of articles and the Cochrane RoB 2.0 Tool will be used to assess for bias. Clarifying the evidence in this area will be important for future research directions when developing and piloting health interventions for researchers and healthcare clinicians in the field.

ETHICS AND DISSEMINATION

There are no human participants, data, or tissue being directly studied for the purposes of the review; therefore, ethics approval and consent to participate is not applicable.

REGISTRATION AND STATUS

PROSPERO 2018 CRD42018116093.

摘要

引言

患有自闭症谱系障碍(ASD)的成年人可能会经历许多影响其日常生活的因素。追求最佳健康状态并维持健康的生活方式需要能够获得适当的医疗保健服务,然而,患有ASD的成年人的医疗保健需求尚未得到满足。ASD成年人获得医疗保健的障碍和促进因素仍不明确。我们将进行一项系统综述,以探索目前关于ASD成年人获得医疗保健的已知情况,这将确定获得医疗保健服务的水平和适当性,以更好地支持ASD成年人的生活。

方法与分析

该系统综述将报告所有包括定量、定性和混合方法设计的研究,这些研究考虑了ASD成年人的医疗保健获取情况。我们将搜索5个数据库:EBSCOhost、Scopus、PubMed、Cochrane图书馆和Web of Science。混合方法评估工具(MMAT)将用于评估文章质量,Cochrane RoB 2.0工具将用于评估偏倚。澄清该领域的证据对于该领域的研究人员和医疗保健临床医生在开发和试点健康干预措施时的未来研究方向至关重要。

伦理与传播

本综述并非直接针对人类参与者、数据或组织进行研究;因此,伦理批准和参与同意不适用。

注册与状态

PROSPERO 2018 CRD42018116093。

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