Lumsa University, Via Pompeo Magno, 22 - 00192, Rome, Italy.
J Bioeth Inq. 2019 Jun;16(2):227-236. doi: 10.1007/s11673-019-09900-w. Epub 2019 Feb 14.
The right to health implies, among other things, that individuals and communities must be allowed to have a voice in decisions concerning the definition of their well-being. The article argues for a more active participation of ethnocultural minorities in healthcare decisions and highlights the relevance of strategies aimed at creating a bottom-up engagement of people and groups, as well as of measures aimed at a broader organizational flexibility, in order to meet migrants' and minorities' needs. Finally, the article clarifies that these strategies are not simply the outcome of a welcoming attitude of the Western healthcare system but may be interpreted as a specific duty resulting from the notion of "particularly vulnerable groups," as formulated by the ECtHR in its case law: when vulnerable groups are at stake, every decision about state actions and rules regarding healthcare should start from an a consideration of the specific conditions and needs of people belonging to vulnerable minority groups.
健康权意味着,除其他外,必须允许个人和社区在决定自身福祉的定义方面发表意见。本文主张让族裔少数群体更积极地参与医疗保健决策,并强调了旨在让人们和群体自下而上参与的战略以及旨在提高组织灵活性的措施的相关性,以满足移民和少数群体的需求。最后,本文澄清说,这些战略不仅仅是西方医疗保健系统欢迎态度的结果,而且可以解释为欧洲人权法院在其判例法中提出的“特别弱势群体”概念所规定的一项具体义务:当弱势群体受到威胁时,关于国家行动和医疗保健规则的每一项决策都应从属于弱势少数群体的具体条件和需求出发。