Department of Obstetrics and Gynecology, University of Michigan, Ann Arbor, MI.
patient advocate, Fairfax, VA.
Am J Obstet Gynecol. 2019 Aug;221(2):86-94. doi: 10.1016/j.ajog.2019.02.033. Epub 2019 Feb 18.
Endometriosis, a systemic disease that is often painful and chronic, affects ∼10% of reproductive-age women. The disease can have a negative impact on a patient's physical and emotional well-being, quality of life, and productivity. Endometriosis also places significant economic and social burden on patients, their families, and society as a whole. Despite its high prevalence and cost, endometriosis remains underfunded and underresearched, greatly limiting our understanding of the disease and slowing much-needed innovation in diagnostic and treatment options. Due in part to the societal normalization of women's pain and stigma around menstrual issues, there is also a lack of disease awareness among patients, health care providers, and the public. The Society for Women's Health Research convened an interdisciplinary group of expert researchers, clinicians, and patients for a roundtable meeting to review the current state of the science on endometriosis and identify areas of need to improve a woman's diagnosis, treatment, and access to quality care. Comprehensive and interdisciplinary approaches to disease management and increased education and disease awareness for patients, health care providers, and the public are needed to remove stigma, increase timely and accurate diagnosis and treatment, and allow for new advancements.
子宫内膜异位症是一种常见的疼痛性和慢性疾病,影响约 10%的育龄妇女。该疾病会对患者的身心健康、生活质量和生产力产生负面影响。子宫内膜异位症也会给患者、他们的家庭和整个社会带来巨大的经济和社会负担。尽管子宫内膜异位症的发病率和成本都很高,但它的研究资金仍然不足,研究也不足,这极大地限制了我们对这种疾病的理解,并减缓了诊断和治疗方案急需的创新。部分由于社会对女性疼痛和月经问题的污名化,患者、医疗保健提供者和公众对这种疾病的认识也不足。妇女健康研究协会召集了一组跨学科的专家研究人员、临床医生和患者,举行了一次圆桌会议,审查子宫内膜异位症的当前科学状况,并确定需要改善女性诊断、治疗和获得优质护理的领域。需要采取全面和跨学科的疾病管理方法,并加强对患者、医疗保健提供者和公众的教育和疾病认识,以消除污名化,提高及时和准确的诊断和治疗,并促进新的进展。