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耻辱感与子宫内膜异位症:简要概述及改善心理社会福祉和诊断延误的建议。

Stigma and Endometriosis: A Brief Overview and Recommendations to Improve Psychosocial Well-Being and Diagnostic Delay.

机构信息

Department of Social Work, College of Arts and Sciences, University of Alabama at Birmingham, Birmingham, AL 35294, USA.

Department of Health Behavior, School of Public Health, University of Alabama at Birmingham, Birmingham, AL 35294, USA.

出版信息

Int J Environ Res Public Health. 2021 Aug 3;18(15):8210. doi: 10.3390/ijerph18158210.

Abstract

Endometriosis is a chronic gynecological disease that affects approximately 1 in 10 women of reproductive age. Symptoms of severe pelvic pain, infertility, fatigue, and abnormal menstruation can cause significant negative effects on an individual's physical and mental health, including interactions with their family, friends, and health care providers. Stigma associated with endometriosis has been under-studied and is rarely discussed in current literature. Herein, this paper aims to provide a brief overview of published literature to explore and establish the plausibility of stigma as a driver of suboptimal psychosocial well-being and diagnostic delay among individuals living with endometriosis. We present the clinical characteristics and physical and mental health consequences associated with endometriosis, highlight several theoretical constructs of stigma, and review the limited studies documenting women's lived experiences of endometriosis-related stigma. To mitigate harmful effects of this phenomenon, we recommend increasing efforts to assess the prevalence of and to characterize endometriosis-related stigma, implementing awareness campaigns, and developing interventions that combat the multidimensional negative effects of stigma on timely care, treatment, and quality of life for individuals living with endometriosis.

摘要

子宫内膜异位症是一种慢性妇科疾病,影响大约 10%的育龄妇女。严重的盆腔疼痛、不孕、疲劳和异常月经等症状会对个人的身心健康产生重大负面影响,包括与家人、朋友和医疗保健提供者的互动。与子宫内膜异位症相关的污名化现象研究不足,在当前文献中很少讨论。本文旨在提供已发表文献的简要概述,以探讨和确定污名是否是导致子宫内膜异位症患者心理社会健康状况不佳和诊断延迟的驱动因素之一。我们介绍了与子宫内膜异位症相关的临床特征和身心健康后果,强调了污名的几个理论构建,并回顾了有限的研究,记录了女性对与子宫内膜异位症相关的污名的真实体验。为了减轻这种现象的有害影响,我们建议加大努力评估子宫内膜异位症相关污名的流行程度和特征,开展宣传活动,并制定干预措施,以应对污名对及时护理、治疗和生活质量的多方面负面影响。

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