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本文引用的文献

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A Relational Ethics Framework for Advancing Practice with Children with Complex Health Care Needs and Their Parents.一个促进为有复杂医疗需求的儿童及其父母提供服务的关系伦理框架。
Compr Child Adolesc Nurs. 2017 Dec;40(4):268-284. doi: 10.1080/24694193.2017.1373162. Epub 2017 Nov 21.
2
Communicating about prognosis: ethical responsibilities of pediatricians and parents.沟通预后:儿科医生和家长的伦理责任。
Pediatrics. 2014 Feb;133 Suppl 1:S24-30. doi: 10.1542/peds.2013-3608E.
3
Office-based care for lesbian, gay, bisexual, transgender, and questioning youth.基于办公室的女同性恋、男同性恋、双性恋、跨性别和疑问青年的关怀。
Pediatrics. 2013 Jul;132(1):e297-313. doi: 10.1542/peds.2013-1283.
4
What mom and dad don't know can hurt you: adolescent disclosure to and secrecy from parents about type 1 diabetes.父母不知道的事可能会伤害你:青少年向父母透露和对父母隐瞒 1 型糖尿病的情况。
J Pediatr Psychol. 2013 Mar;38(2):141-50. doi: 10.1093/jpepsy/jss102. Epub 2012 Sep 25.
5
Family experiences with outpatient care: do adolescents and parents have the same perceptions?家庭对外诊护理的体验:青少年和家长的看法一致吗?
J Adolesc Health. 2010 Jul;47(1):92-8. doi: 10.1016/j.jadohealth.2009.12.005. Epub 2010 Feb 4.
6
Treatment decisions regarding infants, children and adolescents.关于婴儿、儿童和青少年的治疗决策。
Paediatr Child Health. 2004 Feb;9(2):99-114. doi: 10.1093/pch/9.2.99.
7
Abortion in adolescents: epidemiology, confidentiality, and methods.青少年堕胎:流行病学、保密性及方法
Curr Opin Obstet Gynecol. 2009 Oct;21(5):390-5. doi: 10.1097/GCO.0b013e3283307b84.
8
The role of the nurse practitioner in cases of child sexual abuse.执业护士在儿童性虐待案件中的作用。
Nurse Pract. 2007 Sep;32(9):45-9. doi: 10.1097/01.NPR.0000287470.11754.73.
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Pelvic pain in the female adolescent patient.青春期女性患者的盆腔疼痛
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儿童也需要隐私:尊重儿科医疗中的保密原则。

Children need privacy too: Respecting confidentiality in paediatric practice.

作者信息

Noiseux Justine, Rich Harold, Bouchard Nathalie, Noronha Crystal, Carnevale Franco A

机构信息

Pediatric Ethics Committee, Montreal Children's Hospital, Montreal, Quebec.

Views On Interdisciplinary Childhood Ethics (VOICE) Research Program, McGill University, Montreal, Quebec.

出版信息

Paediatr Child Health. 2019 Feb;24(1):e8-e12. doi: 10.1093/pch/pxy047. Epub 2018 May 18.

DOI:10.1093/pch/pxy047
PMID:30792603
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6376305/
Abstract

There is a paucity of published research and normative standards to guide health care providers in managing issues related to children's confidentiality. In this article, we examine challenges regarding the respect for confidentiality with children and youth in health care and offer guiding principles for clinical practice. We present an ethical framework and practice recommendations for: (a) respecting confidentiality for children who have decision-making capacity (as legally defined in different jurisdictions) and (b) recognizing some degree of respect for confidentiality among children who do not have decision-making capacity. This article will help incite additional analyses and research that can further refine the normative and practice standards proposed here.

摘要

目前缺乏已发表的研究和规范标准来指导医疗保健提供者处理与儿童保密相关的问题。在本文中,我们探讨了在医疗保健中尊重儿童和青少年保密权所面临的挑战,并为临床实践提供指导原则。我们提出了一个伦理框架和实践建议,用于:(a) 尊重具有决策能力(在不同司法管辖区有法律定义)的儿童的保密权,以及 (b) 在不具有决策能力的儿童中认可一定程度的保密尊重。本文将有助于激发更多的分析和研究,从而进一步完善此处提出的规范和实践标准。