Department of Psychiatry and Behavioral Health, Ann and Robert H. Lurie Children's Hospital of Chicago, Chicago, Illinois.
Stanley Manne Children's Research Institute, Biostatistics Research Core, Ann and Robert H. Lurie Children's Hospital of Chicago, Chicago, Illinois.
Pediatr Diabetes. 2019 May;20(3):353-360. doi: 10.1111/pedi.12836. Epub 2019 Mar 24.
Prior studies suggest diabetes camps improve psychosocial well-being in youth with type 1 diabetes but these studies suffer from variable levels of rigor. The present study assessed associations between camp participation and diabetes distress, perceived independence in diabetes self-care, and diabetes strengths in a large sample of children, adolescents, and their parents across 44 camps in the United States. Analyses compared viewpoints of study participants, identified moderators of change, and assessed perceived benefits of camp participation.
There were 2488 youth and 2563 parents consented for participation in the online survey. Participants reported diabetes distress and perceived independence in youth care, their new experiences and best parts of camp, and changes in behavior following camp. T-tests, regressions, Cohen's d, and relative frequencies were used as appropriate to assess baseline differences between reporters, pre-post outcome differences, and moderators of change.
Parents as compared to youth reported higher pre-camp distress and lower perception of youth independence in self-care. Youth experienced a statistically significant decrease in distress and increase in independence in self-care. Diabetes strengths did not change. Higher A1c prior to camp was associated with higher levels of distress across camp participation. Campers and their parents endorsed a high frequency of positive firsts, bests, and benefits of camp.
Data from a large sample youth with type 1 diabetes across multiple camps showed broad-based psychosocial benefits of camp participation.
先前的研究表明，糖尿病夏令营可改善 1 型糖尿病青少年的社会心理福祉，但这些研究的严谨程度存在差异。本研究在美国 44 个营地的大量儿童、青少年及其家长中，评估了参与夏令营与糖尿病困扰、糖尿病自我护理独立性的感知以及糖尿病优势之间的关联。分析比较了研究参与者的观点，确定了变化的调节因素，并评估了参与夏令营的感知益处。
共有 2488 名青少年和 2563 名家长同意参与在线调查。参与者报告了青少年的糖尿病困扰和自我护理独立性的感知、他们在夏令营中的新体验和最佳部分，以及夏令营后的行为变化。适当使用 t 检验、回归、Cohen's d 和相对频率来评估报告者之间的基线差异、前后结果差异以及变化的调节因素。
与青少年相比，家长报告的糖尿病困扰更高，对青少年自我护理独立性的感知较低。青少年的困扰程度显著降低，自我护理独立性显著提高。糖尿病优势没有变化。夏令营前的 A1c 较高与夏令营参与期间的困扰程度较高有关。营员及其家长高度认可夏令营的积极体验、最佳体验和益处。
来自多个营地的大量 1 型糖尿病青少年的样本数据表明，参与夏令营具有广泛的社会心理益处。
