Suppr超能文献

同伴支持和共同设计服务的需求:一项了解1型糖尿病青少年糖尿病教育项目需求的定性研究。

The Need for Peer Support and Codesigned Services: A Qualitative Study to Understand Diabetes Education Program Needs of Adolescents With Type 1 Diabetes.

作者信息

Ng Ashley H, Peng Wenbo, Murfet Giuliana, Payk Marlene, Barlow Siobhan, Lin Shanshan

机构信息

School of Public Health, Faculty of Health, University of Technology Sydney, Sydney, Australia.

Monash Centre for Health Research and Implementation, Monash University, Melbourne, Australia.

出版信息

Pediatr Diabetes. 2025 Jun 24;2025:1843544. doi: 10.1155/pedi/1843544. eCollection 2025.

Abstract

Developmental challenges of adolescence, such as puberty and social pressures, exacerbate the complexity of managing type 1 diabetes (T1D) as they transition from pediatric to adult care. However, there is a paucity of codesigned, evidence-based diabetes education and support programs and services to guide adolescents through this transition. This study aimed to explore the experiences, perspectives, facilitators, and barriers faced by adolescents with T1D in diabetes education and program services and to identify feasible approaches to support them as they transition from pediatric to adult care. Semistructured interviews were conducted with 13 adolescents aged 13-19 years with T1D. Thematic analysis was used to understand participants' past experiences, facilitators, barriers, and preferences regarding diabetes education programs and services. Participants highly valued the opportunity to meet with peers living with T1D and the emotional support from those interactions. Participants also highlighted the need for age-appropriate content and interactive learning experiences. Suggested gamification features were well-received, with participants emphasizing the importance of interactivity. While there was not a strong preference between virtual or in-person game formats, it was suggested that online options offered flexibility and inclusiveness regardless of physical abilities. Participants were not as enthusiastic for a one-on-one live chat compared to an online community chat, again, for the opportunity for peer support. The study highlights the value that adolescents with T1D place on peer support that arises from opportunities to meet others through in-person events. It was evident that codesigning diabetes education programs and services with adolescents with T1D is key to develop tailored offerings for this population.

摘要

青春期的发育挑战,如青春期和社会压力,在青少年从儿科护理过渡到成人护理时,加剧了管理1型糖尿病(T1D)的复杂性。然而,缺乏共同设计的、基于证据的糖尿病教育及支持项目和服务来指导青少年度过这一过渡阶段。本研究旨在探索患有T1D的青少年在糖尿病教育和项目服务中所经历的体验、观点、促进因素和障碍,并确定在他们从儿科护理过渡到成人护理时支持他们的可行方法。对13名年龄在13 - 19岁的患有T1D的青少年进行了半结构化访谈。采用主题分析法来了解参与者对糖尿病教育项目和服务的过往经历、促进因素、障碍及偏好。参与者高度重视与患有T1D的同龄人见面的机会以及这些互动所带来的情感支持。参与者还强调了对适合年龄的内容和互动学习体验的需求。所建议的游戏化特征很受欢迎,参与者强调了互动性的重要性。虽然对于虚拟或面对面游戏形式没有强烈偏好,但有人认为在线选项无论身体能力如何都提供了灵活性和包容性。与在线社区聊天相比,参与者对一对一实时聊天的热情不高,同样是因为有获得同伴支持的机会。该研究强调了患有T1D的青少年对通过面对面活动结识他人的机会所产生的同伴支持的重视。显然,与患有T1D的青少年共同设计糖尿病教育项目和服务是为该人群开发量身定制产品的关键。

相似文献

本文引用的文献

2
Living between two worlds: lessons for community involvement.生活在两个世界之间:社区参与的经验教训
Lancet Diabetes Endocrinol. 2024 Mar;12(3):155-157. doi: 10.1016/S2213-8587(24)00032-9.
9
Reimagining care for young adults living with type 1 diabetes.重新构想 1 型糖尿病青少年患者的护理模式。
J Diabetes Investig. 2022 Aug;13(8):1294-1299. doi: 10.1111/jdi.13824. Epub 2022 May 16.

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验