Chen Yu, Abel Kingsley T, Cramer Steven C, Zheng Kai, Chen Yunan
Department of Informatics, University of California, Irvine, Irvine, California, USA.
Department of Neurology, University of California, Irvine, Irvine, California, USA.
AMIA Annu Symp Proc. 2018 Dec 5;2018:1300-1309. eCollection 2018.
Stroke is a chronic condition and a leading cause of disability. After hospital discharge, patients need to transition into home-based rehabilitation, a long and distressful process. However, they are often ill-prepared to manage recovery at home; and many are socially isolated. There is a growing number of stroke patients who utilize social media platforms, YouTube in particular, to publish video blogs (vlogs) to make their stories heard and to share their rehabilitation experience. In this study, we analyzed 246 such YouTube vlogs to better understand this new form of patient story-telling and its value to vloggers, viewers, as well as healthcare professionals. We found that vlogging helps stroke patients overcome physical and speech constraints to self-journal, and to connect with other people online. Based on these findings, we discuss how future health systems may leverage vlogs to design self-tracking technologies, to generate patient health data, and to offer patient-centered education.
中风是一种慢性病，也是导致残疾的主要原因。出院后，患者需要过渡到居家康复，这是一个漫长且痛苦的过程。然而，他们往往没有做好在家管理康复的准备；而且许多人在社交上处于孤立状态。越来越多的中风患者利用社交媒体平台，尤其是YouTube，发布视频博客（vlog）来讲述自己的故事并分享康复经历。在本研究中，我们分析了246个此类YouTube视频博客，以更好地理解这种新的患者故事讲述形式及其对博主、观众以及医疗保健专业人员的价值。我们发现，视频博客有助于中风患者克服身体和言语限制进行自我记录，并在网上与他人建立联系。基于这些发现，我们讨论了未来的医疗系统如何利用视频博客来设计自我跟踪技术、生成患者健康数据并提供以患者为中心的教育。
