Garg Divyani, Agarwal Ayush, Srivastava Mv Padma, Vishnu Venugopalan Y
Department of Neurology, All India Institute of Medical Sciences, New Delhi, India.
Ann Indian Acad Neurol. 2023 May-Jun;26(3):206-212. doi: 10.4103/aian.aian_58_23. Epub 2023 Apr 20.
Stroke is a leading cause of death and disability globally. Over the last decade, digital health and related technology has emerged as a useful adjunct in the management of persons with stroke, particularly with the development of a large number of mobile phone applications dedicated to various aspects of stroke. However, whether social media can provide similar key support in stroke is an intriguing question. In this systematic review, we aimed to the scope and limits of social media platforms in care and research pertinent to persons with stroke.
PubMed database was searched using Medical Subject Headings terms and exploded keywords. The search retrieved 556 abstracts, which were screened by two reviewers. Of these, 14 studies met the review inclusion criteria. Given the small number of studies and heterogeneity of outcomes, quantitative analysis was not possible. The review was registered on PROSPERO (CRD42022324384).
The social media platforms employed by the included studies comprised YouTube (n = 5), Twitter (n = 5), Facebook (n = 2), both Twitter and Facebook (n = 1), and WhatsApp (n = 1). Four assessed quality and accuracy of videos on YouTube available for stoke patients and caregivers. Three used social media to research link between role of gender and stroke descriptors on social media platforms, and one studied Twitter-derived racial/ethnic perceptual construction on the occurrence of cardiovascular disease. Three studies described use of social media by stroke survivors, in post-stroke care and engagement. 11 studies were assessed to be of "fair" quality and three were assessed to be of "poor" quality.
Limited preliminary data of low quality indicates that social media is used by persons with stroke and their caregivers, and may be harnessed as a tool of education and research. Future studies must address the current lack of high-quality evidence for the use of social media in stroke care.
中风是全球死亡和残疾的主要原因。在过去十年中，数字健康及相关技术已成为中风患者管理中的一项有用辅助手段，尤其是随着大量致力于中风各个方面的手机应用程序的开发。然而，社交媒体能否在中风方面提供类似的关键支持是一个有趣的问题。在这项系统评价中，我们旨在探讨社交媒体平台在与中风患者相关的护理和研究中的范围及局限性。
使用医学主题词和扩展关键词搜索PubMed数据库。检索到556篇摘要，由两名评审员进行筛选。其中，14项研究符合综述纳入标准。鉴于研究数量较少且结果存在异质性，无法进行定量分析。该综述已在PROSPERO（CRD42022324384）上注册。
纳入研究中使用的社交媒体平台包括YouTube（n = 5）、Twitter（n = 5）、Facebook（n = 2）、Twitter和Facebook两者（n = 1）以及WhatsApp（n = 1）。四项研究评估了YouTube上可供中风患者和护理人员使用的视频的质量和准确性。三项研究利用社交媒体研究性别角色与社交媒体平台上中风描述符之间的联系，一项研究了Twitter上关于心血管疾病发生的种族/族裔认知构建。三项研究描述了中风幸存者在中风后护理和参与中对社交媒体的使用。11项研究被评估为“中等”质量，三项被评估为“差”质量。
有限的低质量初步数据表明，中风患者及其护理人员会使用社交媒体，并且社交媒体可作为教育和研究工具。未来的研究必须解决目前在中风护理中使用社交媒体缺乏高质量证据的问题。
