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慢性阻塞性肺疾病患者对疾病进程及物理治疗管理的知识、态度和行为评估:一项定性研究

Assessment of knowledge, attitude, and behavior about the disease process and physiotherapy management in patients with chronic obstructive pulmonary disease: A qualitative study.

作者信息

Gupta Ashish, Ravaliya Vinod, Mishra Daxa, Dani Vyoma, Sodawala Chandni, Shah Hardi, Patel Disha

机构信息

K M Patel Institute of Physiotherapy, H M Patel Centre for Medical Care and Education, Shree Krishna Hospital, Karamsad, Anand, Gujarat, India.

Alberta Health Services, Edmonton, Alberta, Canada.

出版信息

J Educ Health Promot. 2019 Jan 29;8:15. doi: 10.4103/jehp.jehp_209_18. eCollection 2019.

DOI:10.4103/jehp.jehp_209_18
PMID:30815486
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6378829/
Abstract

BACKGROUND

Chronic obstructive pulmonary disease (COPD) is a group of progressive lung diseases; the most common are emphysema and chronic bronchitis. It is considered to be the major cause of morbidity and mortality worldwide and is considered to be one of the leading causes of deaths in India, the main reason being misconception/misinterpretation of the disease and unawareness about the risk factors which hinder early diagnosis and its treatment effectively. Therefore, the present study aimed to assess the knowledge, attitude and behavior about the disease process and physiotherapy management in patients diagnosed with COPD.

MATERIALS AND METHODS

Ethical clearance was obtained before initiating the study. It was a cross-sectional, qualitative study. In total, 14 patients of COPD were recruited for the study by convenience sampling. The total study duration was 6 months. Two focused groups ( = 14) were conducted with seven COPD patients (diagnosed by chest physician on the basis of pulmonary function testing) in each after obtaining the written informed consent. Focus group contents were video graphed after obtaining the consent and a focus group discussion (FGD) guide comprising of 15 questions was used for the study. Transcripts were prepared from the audio/video recordings and were analyzed qualitatively by narrative analysis.

RESULTS

The narration transcripted during both the sessions of FGD showed significant negligence about the disease process, its precipitating factors, preventive measures, and physiotherapy management among the patients suffering from COPD in the community. None of the patients were aware even about the term "chronic obstructive pulmonary disease" and only 35.71% of patients were aware of physiotherapy management as a mean of treatment for COPD.

CONCLUSIONS

The present study concludes that there is a lack of knowledge, incorrect attitudes, and flawed behavioral changes which needs to be corrected among the patients with COPD. These patients require correct, detailed, and broad-based information about their condition and availability of treatment options.

摘要

背景

慢性阻塞性肺疾病(COPD)是一组进行性肺部疾病;最常见的是肺气肿和慢性支气管炎。它被认为是全球发病和死亡的主要原因,并且被认为是印度主要的死亡原因之一,主要原因是对该疾病的误解/错误解读以及对阻碍早期诊断和有效治疗的危险因素缺乏认识。因此,本研究旨在评估被诊断为COPD的患者对疾病过程和物理治疗管理的知识、态度和行为。

材料与方法

在开展研究前获得伦理批准。这是一项横断面定性研究。通过便利抽样共招募了14名COPD患者参与研究。研究总时长为6个月。在获得书面知情同意后,对每组7名COPD患者(由胸科医生根据肺功能测试诊断)进行了两个焦点小组(共14名)访谈。获得同意后对焦点小组内容进行录像,并使用包含15个问题的焦点小组讨论(FGD)指南进行研究。从音频/视频记录中整理出文字记录,并通过叙事分析进行定性分析。

结果

FGD两个环节的叙述文字记录显示,社区中患有COPD的患者对疾病过程、诱发因素、预防措施和物理治疗管理存在明显疏忽。甚至没有患者知晓“慢性阻塞性肺疾病”这个术语,只有35.71%的患者知道物理治疗管理是COPD的一种治疗方式。

结论

本研究得出结论,COPD患者缺乏知识、态度不正确且行为改变存在缺陷,这些都需要得到纠正。这些患者需要关于自身病情以及可用治疗方案的正确、详细且全面的信息。

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本文引用的文献

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A Basic Question: Are Patients with Chronic Obstructive Pulmonary Disease Aware of Their Disease?一个基本问题:慢性阻塞性肺疾病患者了解自己的病情吗?
Turk Thorac J. 2017 Oct;18(4):114-118. doi: 10.5152/TurkThoracJ.2017.16048. Epub 2017 Oct 1.
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Awareness in patients with COPD about the disease and pulmonary rehabilitation: A survey.慢性阻塞性肺疾病患者对该疾病及肺康复的认知:一项调查
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India needs a national COPD prevention and control programme.印度需要一个全国性的慢性阻塞性肺疾病预防与控制项目。
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