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3
Predicting decline and survival in severe acute brain injury: the fourth trajectory.预测重度急性脑损伤的病情恶化和生存情况:第四条轨迹
BMJ. 2015 Aug 6;351:h3904. doi: 10.1136/bmj.h3904.
4
Communication and Quality of Care on Palliative Care Units: A Qualitative Study.安宁疗护病房的沟通与护理质量:一项定性研究。
J Palliat Med. 2015 Sep;18(9):758-64. doi: 10.1089/jpm.2014.0408. Epub 2015 Jun 12.
5
Ethical dilemmas around the dying patient with stroke: a qualitative interview study with team members on stroke units in Sweden.临终卒中患者的伦理困境:瑞典卒中病房团队成员的定性访谈研究。
J Neurosci Nurs. 2014 Jun;46(3):162-70. doi: 10.1097/JNN.0000000000000049.
6
World Medical Association Declaration of Helsinki: ethical principles for medical research involving human subjects.《世界医学协会赫尔辛基宣言:涉及人类受试者的医学研究伦理原则》
JAMA. 2013 Nov 27;310(20):2191-4. doi: 10.1001/jama.2013.281053.
7
Concept determination of human dignity.人类尊严的概念界定
Nurs Ethics. 2013 Dec;20(8):851-60. doi: 10.1177/0969733013487193. Epub 2013 Jun 27.
8
Next of kin's experiences of sudden and unexpected death from stroke - a study of narratives.亲属对中风引起的突然和意外死亡的体验——叙事研究。
BMC Nurs. 2013 Apr 17;12:13. doi: 10.1186/1472-6955-12-13.
9
Provision of palliative and end-of-life care in stroke units: a qualitative study.卒中单元中姑息治疗和临终关怀的提供:一项定性研究。
Palliat Med. 2013 Oct;27(9):855-60. doi: 10.1177/0269216313483846. Epub 2013 Apr 11.
10
Strategies for handling ethical problems in sudden and unexpected death.应对突发意外死亡中伦理问题的策略。
Nurs Ethics. 2013 Sep;20(6):708-22. doi: 10.1177/0969733012473770. Epub 2013 Mar 1.

沟通,在意外猝死中创造有尊严相遇的关键——以中风为例

Communication, the Key in Creating Dignified Encounters in Unexpected Sudden Death - With Stroke as Example.

作者信息

Cu Rejnö Åsa, Berg Linda K

机构信息

Department of Medicine, Stroke Unit, Skaraborg Hospital Skövde, Skövde, Sweden.

Department of Health Sciences, University West, Trollhättan, Sweden.

出版信息

Indian J Palliat Care. 2019 Jan-Mar;25(1):9-17. doi: 10.4103/IJPC.IJPC_117_18.

DOI:10.4103/IJPC.IJPC_117_18
PMID:30820095
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6388597/
Abstract

AIM

The aim of this study was to illuminate the communication and its meaning in unexpected sudden death with stroke as example, as experienced by stroke team members and next of kin.

SUBJECT AND METHODS

The study has a qualitative design. Secondary analysis of data from four previous interview studies with stroke team members; physicians, registered nurses, and enrolled nurses from the stroke units (SU) and next of kin of patients who had died due to acute stroke during hospital stay were utilized.

RESULTS

Communication is revealed as the foundation for care and caring with the overarching theme foundation for dignified encounters in care built-up by six themes illuminating the meaning of communication in unexpected sudden death by stroke.

CONCLUSION

Communication shown as the foundation for dignified encounters in care as experienced by stroke team members and next of kin enables the patient to come forth as a unique person and uphold absolute dignity in care. Acknowledging the next of kin's familiarity with the severely ill patient will contribute to personalizing the patient and in this way be the ground for a person centeredness in care despite the patients' inability to defend their own interests. Through knowledge about the patient as a person, the foundation for dignified care is given, expressed through respect for the patient's will and desires and derived through conversations between carers and next of kin.

摘要

目的

本研究旨在以中风为例,阐明中风团队成员和近亲所经历的意外猝死中的沟通及其意义。

对象与方法

本研究采用质性设计。对之前四项针对中风团队成员(来自中风单元的医生、注册护士和在编护士)以及在住院期间因急性中风死亡患者的近亲进行访谈研究的数据进行二次分析。

结果

沟通被揭示为护理和关怀的基础,其总体主题为护理中尊严相遇的基础,由六个主题构成,这些主题阐明了中风导致的意外猝死中沟通的意义。

结论

中风团队成员和近亲所经历的沟通被视为护理中尊严相遇的基础,这使患者能够展现为独特的个体,并在护理中维护绝对尊严。承认近亲对重症患者的熟悉程度将有助于使患者个体化,从而成为以患者为中心的护理基础,尽管患者无法维护自身利益。通过了解患者作为个体的情况,奠定了尊严护理的基础,这体现在对患者意愿和愿望的尊重上,并通过护理人员与近亲之间的对话得以实现。