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Hindrances of peripherally inserted central catheter care of leukemia patients: a qualitative study.白血病患者外周中心静脉置管护理的障碍:一项定性研究。
Support Care Cancer. 2021 Aug;29(8):4339-4347. doi: 10.1007/s00520-020-05941-9. Epub 2021 Jan 7.
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NeuroRehabilitation. 2020;46(2):195-204. doi: 10.3233/NRE-192970.
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The effects of mindfulness-based intervention on quality of life and poststroke depression in patients with spontaneous intracerebral hemorrhage in China.正念干预对中国自发性脑出血患者生活质量和卒中后抑郁的影响。
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一项关于中风患者及其家属人文关怀需求的定性研究。

A Qualitative Study on the Humanistic Care Needs of Patients with Stroke and Their Families.

作者信息

Li Min, Xie Hongzhen, Luo Qing, Huang Guangbin, Xu Guoxian, Cheng Ye, Li Jun

机构信息

Department of Traumatology, Chongqing University Central Hospital, Chongqing Emergency Medical Center, Chongqing, People's Republic of China.

Department of Health Medicine, General Hospital of Southern Theatre Command, Guangzhou, People's Republic of China.

出版信息

J Multidiscip Healthc. 2023 Mar 16;16:717-730. doi: 10.2147/JMDH.S388539. eCollection 2023.

DOI:10.2147/JMDH.S388539
PMID:36959865
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10028555/
Abstract

BACKGROUND

International stroke care guidelines recommend the routine assessment and management of psychological and emotional problems in patients and their families after a stroke. This study aimed to explore the humanistic nursing needs of patients with stroke and their families and provide a basis for the construction of humanistic nursing practice guidelines for advanced stroke.

METHODS

From September to October 2019, using the descriptive phenomenological research method, a semi-structured interview outline was formed based on a literature review and subject group discussions. A targeted sampling method was used to investigate 21 patients with stroke and 21 family members, respectively, and their care needs were investigated in depth. Colaizzi's thematic cluster analysis was used to analyse the data, and a total of 6 themes and 14 sub-themes were summarised.

RESULTS

The 6 themes and 14 sub-themes were as follows: ① psychological care, ② security concerns (professional personal integrity, timely response), ③ emotional care (service consciousness, positive incentives, empathy, effective communication, provision of a communication platform, personalised care), ④ respect for rights, ⑤ rehabilitation care (rehabilitation programme, professional guidance, rehabilitation configuration, continuation of services) and ⑥ family care (physical and psychological support, care guidance).

CONCLUSION

Among the humanistic care needs of patients with stroke and their families, the most basic physiological care accounts for the largest proportion of emotional and rehabilitation care, followed by safety care, respect for rights and family care. Based on the actual humanistic care needs of patients with stroke and their families, the practical effect of humanistic care in stroke wards can be improved. This study provides a reference for the construction of humanistic nursing practice guidelines for late stroke.

摘要

背景

国际卒中护理指南建议对卒中患者及其家属的心理和情感问题进行常规评估与管理。本研究旨在探讨卒中患者及其家属的人文护理需求,为构建晚期卒中人文护理实践指南提供依据。

方法

2019年9月至10月,采用描述性现象学研究方法,在文献回顾和主题小组讨论的基础上形成半结构式访谈提纲。采用目的抽样法分别对21例卒中患者和21名家属进行调查,深入了解他们的护理需求。采用Colaizzi主题聚类分析法对数据进行分析,共总结出6个主题和14个子主题。

结果

6个主题和14个子主题如下:①心理护理;②安全关切(专业操守、及时响应);③情感护理(服务意识、积极激励、同理心、有效沟通、提供沟通平台、个性化护理);④权利尊重;⑤康复护理(康复方案、专业指导、康复配置、服务延续);⑥家庭护理(身心支持、护理指导)。

结论

在卒中患者及其家属的人文关怀需求中,最基本的生理护理在情感和康复护理中占比最大,其次是安全护理、权利尊重和家庭护理。基于卒中患者及其家属实际的人文关怀需求,可以提高卒中病房人文关怀的实际效果。本研究为晚期卒中人文护理实践指南的构建提供了参考。