一份用于评估痴呆症患者户外参与情况的问卷的编制
Development of a Questionnaire to Evaluate Out-of-Home Participation for People With Dementia.
作者信息
Margot-Cattin Isabel, Kuhne Nicolas, Kottorp Anders, Cutchin Malcolm, Öhman Annika, Nygård Louise
机构信息
Isabel Margot-Cattin, MSc-OT, is Associate Professor, Department of Occupational Therapy, School of Social Work and Health-Haute École de Travail Social et de la Santé (EESP), University of Applied Sciences and Arts of Western Switzerland (HES-SO), Lausanne, and PhD Candidate, Division of Occupational Therapy, Department of Neurobiology, Care Science and Society Institutionen för Neurobiologi, vårdvetenskap och samhålle (NVS), Karolinska Institutet, Stockholm, Sweden;
Nicolas Kuhne, PhD, is Professor, Department of Occupational Therapy, School of Social Work and Health-EESP, HES-SO, Lausanne.
出版信息
Am J Occup Ther. 2019 Jan/Feb;73(1):7301205030p1-7301205030p10. doi: 10.5014/ajot.2019.027144.
OBJECTIVE
We describe the development of a questionnaire, Participation in Activities and Places Outside Home (ACT-OUT), for older adults with cognitive impairment and align it to people with mild- to moderate-stage dementia.
METHOD
ACT-OUT was developed in a cross-cultural collaboration in combination with three rounds of cognitive interviews in Switzerland with 26 older adults without cognitive impairment and five older adults with dementia. Qualitative data from the interviews were analyzed using a constant comparison approach.
RESULTS
The final ACT-OUT Version 1.0 consists of three parts: (1) questions targeting places older adults visit; (2) questions on aspects influencing participation, such as transportation, familiarity, and risk perception; and (3) questions on perception of self.
CONCLUSION
The development of an instrument such as ACT-OUT is more a cyclical than a linear process. This study is a first step toward a more systematic evaluation of out-of-home participation among older adults with and without dementia.
目的
我们描述了一种针对认知障碍老年人的问卷——“外出活动参与情况问卷（ACT - OUT）”的开发过程，并使其适用于轻度至中度痴呆症患者。
方法
ACT - OUT是在跨文化合作中开发的，结合了在瑞士对26名无认知障碍的老年人和5名患有痴呆症的老年人进行的三轮认知访谈。使用持续比较法对访谈中的定性数据进行分析。
结果
最终的ACT - OUT 1.0版本由三部分组成：（1）针对老年人访问场所的问题；（2）关于影响参与的方面的问题，如交通、熟悉程度和风险感知；（3）关于自我认知的问题。
结论
像ACT - OUT这样的工具的开发更多是一个循环过程而非线性过程。本研究是朝着更系统地评估有和没有痴呆症的老年人的户外参与情况迈出的第一步。
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