Fattori Giuseppe, Bazzo Stefania, Daghio Monica, Cavazzuti Paola
Marketing Sociale, Università di Bologna.
Coordinamento Nazionale Marketing Sociale - Onlus.
Recenti Prog Med. 2019 Feb;110(2):86-88. doi: 10.1701/3112.31003.
HIV continues to be an important public health problem. The web, social media and new mobile technologies are gaining considerable potential in overcoming the stigma in order to promote continuity of care, the possibility to stay in contact with one's doctor and with the peer community, offering an alternative to traditional social structures. The purpose of this survey it was to investigate the opinions and behavior of people with HIV regarding the use of these technologies.
The survey was designed with the involvement of the main associations of patients and/or communities affected by HIV infection on the national territory, which have oriented the definition of objectives and research tools to a qualitative level. An exploratory survey was carried out aimed at all people with HIV in Italy who use Internet. The questionnaire could be completed online only and was distributed and administered by the associations through their websites, newsletters and general social media (Facebook, Twitter) for three months.
265 people responded on a national level. According to the patients the information obtained from the internet was not useful in the relationship with the infectiologist (70%) and social media is considered to be of little use as a communication tool with the doctor (33%). Only 7% communicate with the infectiologist through social media and only 3% use peer communities such as blogs and forums. The new mobile technologies are instead considered promising tools to support the treatment of the disease (70%).
It is essential to strengthen peer communication and, as emerges from the perception of people with HIV, overcome the possible resistance of health professionals so that the opportunities offered by these tools can improve the care and support of people with HIV.
艾滋病毒仍然是一个重要的公共卫生问题。网络、社交媒体和新的移动技术在消除耻辱感方面正发挥着巨大潜力，以促进持续护理，保持与医生及同伴群体联系的可能性，为传统社会结构提供了一种替代选择。本次调查的目的是研究艾滋病毒感染者对于使用这些技术的看法和行为。
该调查在国家层面受艾滋病毒感染影响的主要患者协会和/或社区的参与下设计而成，这些协会将目标和研究工具的定义导向了定性层面。针对意大利所有使用互联网的艾滋病毒感染者开展了一项探索性调查。问卷仅可在线填写，由各协会通过其网站、时事通讯和一般社交媒体（脸书、推特）分发和管理，为期三个月。
全国范围内有265人做出回应。患者认为从互联网获取的信息在与感染病专家的关系中并无用处（70%），社交媒体被认为作为与医生沟通的工具作用不大（33%）。只有7%的人与感染病专家通过社交媒体交流，只有3%的人使用博客和论坛等同伴社区。相反，新的移动技术被认为是支持疾病治疗的有前景的工具（70%）。
加强同伴间的交流至关重要，而且正如艾滋病毒感染者的看法所示，要克服卫生专业人员可能存在的抵触情绪，以便这些工具所提供的机会能够改善对艾滋病毒感染者的护理和支持。
