Commentary: Individuals affected by Eosinophilic Gastrointestinal Disorders Have Complex Unmet Needs and Experience Barriers to Care.
作者信息
Hiremath Girish, Dellon Evan S
机构信息
Division of Pediatric Gastroenterology, Hepatology and Nutrition, Monroe Carell Jr. Children's Hospital at Vanderbilt, Nashville TN 37232.
Division of Gastroenterology and Hepatology, University of North Carolina School of Medicine, Chapel Hill, NC 27514.
出版信息
J Rare Dis Res Treat. 2018;3(2):34-36. doi: 10.29245/2572-9411/2018/2.1155. Epub 2018 Jul 17.
Abstract
摘要
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Commentary: Individuals affected by Eosinophilic Gastrointestinal Disorders Have Complex Unmet Needs and Experience Barriers to Care.评论：受嗜酸性胃肠道疾病影响的个体有复杂的未满足需求，且在获得医疗护理方面存在障碍。
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本文引用的文献
1
Eosinophilic esophagitis: latest insights from diagnosis to therapy.嗜酸性粒细胞性食管炎：从诊断到治疗的最新见解。
Ann N Y Acad Sci. 2018 Dec;1434(1):84-93. doi: 10.1111/nyas.13731. Epub 2018 May 15.
2
Individuals affected by eosinophilic gastrointestinal disorders have complex unmet needs and frequently experience unique barriers to care.患有嗜酸性粒细胞性胃肠道疾病的个体有复杂的未满足的需求，并经常面临独特的护理障碍。
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Creating a multi-center rare disease consortium - the Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR).创建一个多中心罕见病联盟——嗜酸性胃肠道疾病研究人员联盟（CEGIR）。
Transl Sci Rare Dis. 2017 Dec 18;2(3-4):141-155. doi: 10.3233/TRD-170016.
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Eosinophilic Gastrointestinal Disorders.嗜酸性胃肠道疾病
Pediatr Clin North Am. 2017 Jun;64(3):475-485. doi: 10.1016/j.pcl.2017.01.009.
5
The partnership of patient advocacy groups and clinical investigators in the rare diseases clinical research network.罕见病临床研究网络中患者权益倡导组织与临床研究人员的合作关系。
Orphanet J Rare Dis. 2016 May 18;11(1):66. doi: 10.1186/s13023-016-0445-8.
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Eosinophilic Esophagitis.嗜酸性食管炎
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Prevalence of Eosinophilic Gastritis, Gastroenteritis, and Colitis: Estimates From a National Administrative Database.嗜酸性胃炎、胃肠炎和结肠炎的患病率：来自国家行政数据库的估计
J Pediatr Gastroenterol Nutr. 2016 Jan;62(1):36-42. doi: 10.1097/MPG.0000000000000865.
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Socio-economic burden of rare diseases: A systematic review of cost of illness evidence.罕见病的社会经济负担：疾病成本证据的系统综述
Health Policy. 2015 Jul;119(7):964-79. doi: 10.1016/j.healthpol.2014.12.016. Epub 2014 Dec 30.
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Prevalence of eosinophilic esophagitis in the United States.美国嗜酸性食管炎的患病率。
Clin Gastroenterol Hepatol. 2014 Apr;12(4):589-96.e1. doi: 10.1016/j.cgh.2013.09.008. Epub 2013 Sep 11.
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Clinical research for rare disease: opportunities, challenges, and solutions.罕见病的临床研究：机遇、挑战与解决方案。
Mol Genet Metab. 2009 Jan;96(1):20-6. doi: 10.1016/j.ymgme.2008.10.003. Epub 2008 Nov 13.
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