Oklahoma State University, Psychology Department, Stillwater, OK, United States of America.
J Pediatr Nurs. 2019 May-Jun;46:72-77. doi: 10.1016/j.pedn.2019.02.035. Epub 2019 Mar 8.
Adolescents and young adults (AYAs) with chronic medical conditions are at risk for reduced health-related quality of life (HRQoL). Recent research on AYAs without chronic medical conditions found that greater health care management skills were related to higher HRQoL. In addition, grit, an intrapersonal strength, has been linked to greater health care management skills and HRQoL. The current study extended these findings to AYAs with a chronic medical condition.
Three hundred and seventy-five undergraduates with a chronic medical condition completed questionnaires, including the short Grit Scale, Transition Readiness Assessment Questionnaire, and RAND 36-Item Short Form Survey.
Path analysis revealed a significant direct effect of grit on health care management skills and on both mental and physical HRQoL. Further, health care management skills had a significant indirect effect on the grit → mental HRQoL association, but not on the grit → physical HRQoL association.
Higher levels of grit were linked to better health care management skills and better mental and physical HRQoL. Further, grit and mental HRQoL were indirectly linked through health care management skills, suggesting the utility of these skills in improving mental HRQoL.
Given the observed benefits of higher grit and health care management skills on emotional HRQoL, and the potential impact of health care management skills on future physical HRQoL, interventions targeting the enhancement of grit and health care management skills may be beneficial in improving the efficacy of transition readiness interventions.
患有慢性疾病的青少年和年轻人(AYAs)存在健康相关生活质量(HRQoL)降低的风险。最近对没有慢性疾病的 AYAs 的研究发现,更多的医疗保健管理技能与更高的 HRQoL 相关。此外,毅力作为一种内在力量,与更好的医疗保健管理技能和更高的 HRQoL 相关。本研究将这些发现扩展到患有慢性疾病的 AYAs。
375 名患有慢性疾病的本科生完成了问卷,包括简短的毅力量表、过渡准备评估问卷和 RAND 36 项简短健康调查。
路径分析显示,毅力对医疗保健管理技能以及心理和生理 HRQoL 有显著的直接影响。此外,医疗保健管理技能对毅力与心理 HRQoL 之间的关联有显著的间接影响,但对毅力与生理 HRQoL 之间的关联没有显著的间接影响。
更高水平的毅力与更好的医疗保健管理技能和更好的心理和生理 HRQoL 相关。此外,毅力和心理 HRQoL 通过医疗保健管理技能间接相关,这表明这些技能在改善心理 HRQoL 方面具有一定的效用。
鉴于更高的毅力和医疗保健管理技能对情感 HRQoL 的观察到的益处,以及医疗保健管理技能对未来生理 HRQoL 的潜在影响,针对增强毅力和医疗保健管理技能的干预措施可能有助于提高过渡准备干预措施的效果。