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应对小儿血癌的夫妻:关于二元应对作用的研究

Couples Dealing With Pediatric Blood Cancer: A Study on the Role of Dyadic Coping.

作者信息

Van Schoors Marieke, Loeys Tom, Goubert Liesbet, Berghmans Geertrui, Ooms Britt, Lemiere Jurgen, Norga Koenraad, Verhofstadt Lesley Liliane

机构信息

Department of Experimental Clinical and Health Psychology, Ghent University, Ghent, Belgium.

Department of Data Analysis, Ghent University, Ghent, Belgium.

出版信息

Front Psychol. 2019 Feb 27;10:402. doi: 10.3389/fpsyg.2019.00402. eCollection 2019.

Abstract

Pediatric cancer is a life-threatening disease that poses significant challenges to the ill child and his/her parents. Among the studies investigating risk and protective factors for the individual and relationship adjustment of parents being confronted with pediatric cancer, couple factors - such as dyadic coping - gained little research attention. Therefore, the aim of the current study was to explore the association between dyadic coping and individual/relationship outcomes of parents in the context of pediatric cancer. Participants were 59 couples of children diagnosed with leukemia or Non-Hodgkin lymphoma. Time since diagnosis varied from diagnosis to 20 months. Both parents completed the DCI-short, DASS21, PIP, and MMQ. Positive dyadic coping (i.e., supportive and common dyadic coping) and negative dyadic coping proved to be related to individual and relational outcomes of parents facing cancer in their child. In addition, while men and women reported to be equally satisfied with their partner and their sexual relationship, women reported higher levels of individual maladjustment. Our findings led to the conclusion that dyadic coping is important for both individual as well as relationship outcomes of parents when facing a diagnosis of cancer in their child. When meeting with families, both partners should be invited as a unit in order to best capture couple level experiences. Also, clinicians should be sensitive to relational and sexual issues besides individual issues, taking into account evidence-based standards for psychosocial care in pediatric oncology.

摘要

小儿癌症是一种危及生命的疾病,给患病儿童及其父母带来了巨大挑战。在调查父母面对小儿癌症时个体及关系调适的风险和保护因素的研究中,诸如二元应对等夫妻因素很少受到研究关注。因此,本研究的目的是探讨在小儿癌症背景下二元应对与父母个体/关系结果之间的关联。研究参与者为59对其子女被诊断患有白血病或非霍奇金淋巴瘤的夫妻。从诊断到研究时的时间跨度从确诊到20个月不等。父母双方都完成了简短二元应对量表(DCI-short)、抑郁焦虑压力量表21项(DASS21)、亲子互动问卷(PIP)和婚姻质量问卷(MMQ)。积极的二元应对(即支持性和共同的二元应对)和消极的二元应对被证明与孩子患癌症的父母的个体及关系结果有关。此外,虽然男性和女性报告对其伴侣及性关系的满意度相同,但女性报告的个体适应不良水平更高。我们的研究结果得出结论,当面对孩子患癌症的诊断时,二元应对对父母的个体及关系结果都很重要。在与家庭会面时,应邀请夫妻双方共同参与,以便最好地了解夫妻层面的经历。此外,临床医生除了关注个体问题外,还应关注关系和性问题,同时考虑小儿肿瘤心理社会护理的循证标准。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a6e3/6400881/6867894c91ba/fpsyg-10-00402-g001.jpg

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