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家长视角下儿科癌症诊断后家庭功能变化:多家庭成员访谈分析。

Parents' Perspectives of Changes Within the Family Functioning After a Pediatric Cancer Diagnosis: A Multi Family Member Interview Analysis.

机构信息

1 Ghent University, Ghent, Belgium.

2 Université Catholic de Louvain, Louvain-la-Neuve, Belgium.

出版信息

Qual Health Res. 2018 Jul;28(8):1229-1241. doi: 10.1177/1049732317753587. Epub 2018 Jan 22.

Abstract

Pediatric cancer is a life-threatening disease that challenges the life of the diagnosed child, the parents, and possible siblings. Moreover, it also places considerable demands on family life. The aim of this study was to explore changes in the family functioning after a pediatric cancer diagnosis. Ten couples who had a child with leukemia or non-Hodgkin lymphoma were interviewed individually about their experiences. Interviews were semistructured, and the data were analyzed using Multi Family Member Interview Analysis. Three themes emerged from the data: (a) Family Cohesion: Strengthened Versus Fragmented; (b) Educational Norms and Values: Overindulgence Versus Being Stricter, and (c) Normality: Loss Versus Preservation. The conflicting dynamics present in these emerging themes exemplify the complexity of this process of family adaptation. This study illustrates the need to take into account the family level, as well as the conflicting feelings parents may experience after a pediatric cancer diagnosis.

摘要

儿科癌症是一种危及生命的疾病,会挑战被诊断出癌症的儿童、其父母和可能的兄弟姐妹的生命。此外,它还对家庭生活提出了相当大的要求。本研究旨在探讨儿科癌症诊断后家庭功能的变化。对 10 对有白血病或非霍奇金淋巴瘤儿童的夫妇进行了单独的访谈,以了解他们的经历。访谈采用半结构化方式进行,使用多家庭成员访谈分析方法对数据进行分析。研究结果得出了三个主题:(a)家庭凝聚力:增强与破裂;(b)教育规范和价值观:过度放纵与更严格;(c)常态:丧失与保留。这些新兴主题中存在的矛盾动态体现了家庭适应这一过程的复杂性。本研究说明了需要考虑家庭层面,以及父母在儿科癌症诊断后可能经历的矛盾感受。

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