Cizik School of Nursing, University of Texas Health Science Center at Houston, Houston, TX, USA.
University Medical Center, New Orleans, LA, USA.
J Affect Disord. 2019 May 1;250:391-396. doi: 10.1016/j.jad.2019.03.035. Epub 2019 Mar 6.
Spouses and partners of individuals with bipolar disorder (BD) experience significant burden. As there are some limitations to standard psychosocial caregiver interventions, mobile health technology (mHealth) may be a way to reduce burden and improve well-being in these caregivers. The purpose of this study was to explore how the well-being of spouses or partners of patients with BD can be improved through mHealth technology.
Using a qualitative design, we conducted five focus groups and one in-depth individual interview to collect information from participants about what they would expect from such a device. The sample consists of thirteen participants (eleven spouses and two partners). The age range was 29-65, with eight females and five males. Data were collected using minimally structured interviews and independently analyzed by the authors using content analysis.
Results indicated that the mHealth device many be helpful in at least six areas: reduction of stressors, decreased social isolation, improving communication in the relationship between the spouses, speaking with children about the illness, managing medications, and providing information on resources.
Mobile health technology may be a feasible, available, and cost-effective support tool for spouses and partners of individuals with BD, especially in reducing caregiver stress. Future research is needed to develop the application and test its effectiveness on health outcomes in a larger trial.
双相情感障碍(BD)患者的配偶或伴侣承受着巨大的负担。由于标准心理社会护理干预措施存在一些局限性,移动健康技术(mHealth)可能是减轻这些护理人员负担和改善其幸福感的一种方法。本研究旨在探讨通过 mHealth 技术如何提高 BD 患者配偶或伴侣的幸福感。
采用定性设计,我们进行了五次焦点小组和一次深入的个体访谈,从参与者那里收集有关他们对这类设备的期望的信息。样本由 13 名参与者(11 名配偶和 2 名伴侣)组成。年龄范围为 29-65 岁,女性 8 人,男性 5 人。使用非结构化访谈收集数据,作者独立使用内容分析法进行分析。
结果表明,移动健康设备至少在六个方面可能会有所帮助:减少压力源、减少社交孤立、改善配偶之间的沟通、与孩子谈论疾病、管理药物治疗以及提供资源信息。
移动健康技术可能是 BD 患者配偶或伴侣的一种可行、可用且具有成本效益的支持工具,特别是在减轻护理人员压力方面。需要进一步研究来开发该应用程序,并在更大规模的试验中测试其对健康结果的有效性。