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照顾双相情感障碍患者的生活体验:一项定性研究。

The lived experience of caring for someone with bipolar disorder: A qualitative study.

机构信息

School of Medicine and Public Health, University of Newcastle, Callaghan, NSW, Australia.

School of Psychological Sciences, University of Newcastle, Callaghan, NSW, Australia.

出版信息

PLoS One. 2023 Jan 19;18(1):e0280059. doi: 10.1371/journal.pone.0280059. eCollection 2023.

Abstract

Being a close family or friend of someone with bipolar disorder (BD) can lead to experiences of increased stress, anxiety and depressive symptoms related to the burden of caring. However, the lived experience of being a carer for a person with BD has not received significant research attention. This study aimed to gain further insight into the experiences of individuals in an informal caring role for someone with BD and determine what additional information and support these people need to take care of both themselves and the person they are caring for. Fifteen qualitative interviews were carried out with carers discussing their lived experiences with utilising coping strategies and supporting someone with BD. Following the interviews, thematic analysis was used to identify five key themes. These themes were: Separation of the person and the disorder, carer health and coping strategies, unpredictability and variability of symptoms, carer disillusionment and silencing, and story sharing and support needs. Overall, the findings highlighted the need for increased in-person and online support specifically tailored for carers with loved ones experiencing BD.

摘要

作为双相情感障碍(BD)患者的近亲或密友,可能会因照顾负担而增加压力、焦虑和抑郁症状。然而,作为 BD 患者的照顾者的生活体验并没有受到太多关注。本研究旨在更深入地了解处于非正式照顾角色的个体的经历,并确定这些人需要哪些额外的信息和支持,以照顾自己和他们所照顾的人。对 15 名照顾者进行了定性访谈,讨论了他们在利用应对策略和支持 BD 患者方面的生活经历。访谈结束后,采用主题分析方法确定了五个关键主题。这些主题是:人与疾病的分离、照顾者的健康和应对策略、症状的不可预测性和可变性、照顾者的幻想破灭和沉默、以及故事分享和支持需求。总的来说,研究结果强调需要为有亲人患有 BD 的照顾者提供更多量身定制的面对面和在线支持。

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