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意见领袖助力患者了解数字健康时代:一项定性研究

Opinion leader empowered patients about the era of digital health: a qualitative study.

作者信息

Meskó Bertalan, Radó Nóra, Győrffy Zsuzsa

机构信息

The Medical Futurist Institute, Budapest, Hungary.

Institute of Behavioural Sciences, Semmelweis University, Faculty of Medicine, Budapest, Hungary.

出版信息

BMJ Open. 2019 Mar 20;9(3):e025267. doi: 10.1136/bmjopen-2018-025267.

Abstract

OBJECTIVES

We aimed to explore the opinion leader empowered patients' relationship with their medical professionals, their experiences and beliefs about technologies, and how they see the future. We also attempted to determine whether technologies, the access to it or patient empowerment are the main driving forces behind these changes.

DESIGN

A qualitative interview study analysed with interpretative phenomenological analysis.

SETTING

All interviews were conducted and recorded individually with the same trained interviewer via a Skype call.

PARTICIPANTS

The study is based on qualitative, semistructured interviews with 11 opinion leader empowered patients from six countries including UK, USA, Australia, Sweden, South Africa and Ireland.

RESULTS

We identified four superordinate themes emerging from e-patients' experiences: (1) impact of technology, (2) the meaning of empowerment, (3) the changing physician-patient relationship and (4) expectations for the future. The relationship e-patients have with their physicians is based on efficient communication, proactivity, the desire for asking questions and the use of technologies. The interviews have shown that the rapid development of technology has fundamentally changed the lives of these e-patients, and technology eventually is transforming the physician-patient relationship into a partnership. Regarding the future of the physician-patient partnership, e-patients emphasised that change will rather be cultural than technological.

CONCLUSIONS

The interviews have shown that cooperation between technology and healthcare is not enough on its own: the most decisive factor is the return of the human touch and reciprocal communication. All of these suggest that technology is an important ally in the 'renaissance of medicine' that starts to treat patients as it should have always had.

摘要

目的

我们旨在探讨意见领袖赋能患者与医疗专业人员的关系、他们对技术的体验和信念,以及他们对未来的看法。我们还试图确定技术、获取技术的途径或患者赋能是否是这些变化背后的主要驱动力。

设计

一项采用解释性现象学分析的定性访谈研究。

背景

所有访谈均由同一位经过培训的访谈者通过Skype通话单独进行并录音。

参与者

该研究基于对来自英国、美国、澳大利亚、瑞典、南非和爱尔兰六个国家的11位意见领袖赋能患者进行的定性、半结构化访谈。

结果

我们从电子患者的经历中识别出四个上位主题:(1)技术的影响,(2)赋能的意义,(3)不断变化的医患关系,以及(4)对未来的期望。电子患者与医生的关系基于高效沟通、主动性、提问的欲望以及技术的使用。访谈表明,技术的快速发展从根本上改变了这些电子患者的生活,并且技术最终正在将医患关系转变为一种伙伴关系。关于医患伙伴关系的未来,电子患者强调变化更多的将是文化层面而非技术层面。

结论

访谈表明,技术与医疗保健之间仅靠合作是不够的:最关键的因素是人文关怀和相互沟通的回归。所有这些都表明,技术是“医学复兴”中的重要盟友,医学开始应有的方式来治疗患者。

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