Lavorgna Luigi, Brigo Francesco, Esposito Sabrina, Abbadessa Gianmarco, Sparaco Maddalena, Lanzillo Roberta, Moccia Marcello, Inglese Matilde, Bonfanti Luca, Trojsi Francesca, Spina Emanuele, Russo Antonio, De Micco Pasquale, Clerico Marinella, Tedeschi Gioacchino, Bonavita Simona
Division of Neurology, Department of Advanced Medical and Surgical Sciences, AOU-University of Campania "Luigi Vanvitelli", P.zza Miraglia 2, 80138 Naples, Italy.
Department of Neurology, Hospital of Merano (SABES-ASDAA), 39012 Merano, Italy.
Brain Sci. 2021 Mar 28;11(4):429. doi: 10.3390/brainsci11040429.
Public engagement (PE) is defined as the involvement of "specialists who listen, develop their understanding, and interact with non-specialists in non-profit activities of educational, cultural, and social nature to engage the public in science-related matters". The public health relevance of PE consists in building up a scientifically literate society, able to participate in and support scientific and technological developments and their implications for educational settings. Neurological disorders account for 35% of all diseases. PE could have a positive impact on the lives of people affected by neurological diseases.
This review evaluates the role of PE in dementia, stroke, epilepsy, multiple sclerosis, Parkinson's disease, migraine, neurogenetics, and amyotrophic lateral sclerosis.
PE can provide accessible information, support research activities and prevention through appropriate lifestyles, and increase knowledge and awareness of neurological disorders, improving their diagnosis and treatment.
公众参与（PE）被定义为“在教育、文化和社会性质的非营利活动中，专家倾听、增进理解并与非专家互动，以使公众参与与科学相关的事务”。公众参与在公共卫生方面的意义在于建立一个具有科学素养的社会，使其能够参与并支持科技发展及其对教育环境的影响。神经系统疾病占所有疾病的35%。公众参与可能对受神经系统疾病影响的人们的生活产生积极影响。
本综述评估了公众参与在痴呆症、中风、癫痫、多发性硬化症、帕金森病、偏头痛、神经遗传学和肌萎缩侧索硬化症中的作用。
公众参与可以提供易于获取的信息，通过适当的生活方式支持研究活动和预防工作，并增加对神经系统疾病的知识和认识，改善其诊断和治疗。
