年轻成年人所经历的1型糖尿病生活
Living with type 1 diabetes as experienced by young adults.
作者信息
Carlsund Åsa, Söderberg Siv
机构信息
Department of Nursing Sciences Mid-Sweden University Östersund Sweden.
出版信息
Nurs Open. 2018 Dec 18;6(2):418-425. doi: 10.1002/nop2.222. eCollection 2019 Apr.
Abstract
AIM
Describe young adults` (19-30 years) experiences of living with Type 1 Diabetes (T1D).
BACKGROUND
Young adulthood is characterized by adaption to adult roles, gradual separation from parental support and leaving the parental home. Living with T1D in young adulthood raises challenges and concerns.
DESIGN
This study has a qualitative design.
METHODS
Semistructured interviews with 12 young adults living with T1D for 3-14 years, analysed with qualitative content analysis.
RESULTS
The analysis revealed contradictory ways of handling the illness, as is illuminated in two main categories (a) and five subcategories (b). Handling the situation and dealing with different opinions (a), (b) managing daily life, emotional roller coaster and general attitudes, own views and apprehensions, ignorance and lack of motivation. Most participants were motivated, had knowledge and were in control of their long-term illness. Planning and structure were an essential part of their daily life. The participants were anxious about losing control of their bodies, the situation, die or be a burden to other people.
摘要
目的
描述年轻成年人（19 - 30岁）患1型糖尿病（T1D）的生活经历。
背景
青年期的特点是适应成人角色、逐渐脱离父母的支持并离开父母家。青年期患有T1D会带来挑战和担忧。
设计
本研究采用质性设计。
方法
对12名患有T1D 3至14年的年轻成年人进行半结构式访谈，采用质性内容分析法进行分析。
结果
分析揭示了应对疾病的矛盾方式，主要体现在两个主要类别（a）和五个子类别（b）中。应对病情并处理不同意见（a），（b）管理日常生活、情绪起伏以及总体态度、自身观点和担忧、他人的忽视和缺乏动力。大多数参与者有积极性、具备知识并能掌控自己的长期疾病。规划和条理是他们日常生活的重要组成部分。参与者担心失去对自己身体的控制、病情、死亡或成为他人的负担。
相似文献
1
Living with type 1 diabetes as experienced by young adults.年轻成年人所经历的1型糖尿病生活
Nurs Open. 2018 Dec 18;6(2):418-425. doi: 10.1002/nop2.222. eCollection 2019 Apr.
2
An intervention to improve the quality of life in children of parents with serious mental illness: the Young SMILES feasibility RCT.改善严重精神疾病父母子女生活质量的干预措施：Young SMILES 可行性 RCT。
Health Technol Assess. 2020 Nov;24(59):1-136. doi: 10.3310/hta24590.
3
Living with Type 1 Diabetes as Experienced by Adults with Prolonged Elevated HbA1c: A Qualitative Study.糖化血红蛋白长期升高的成年1型糖尿病患者的生活体验：一项定性研究
Diabetes Ther. 2023 Oct;14(10):1673-1684. doi: 10.1007/s13300-023-01443-z. Epub 2023 Jul 20.
4
Experiences of transition to adulthood and transfer to adult care in young adults with type 1 diabetes: A qualitative study.青少年 1 型糖尿病患者向成年期过渡和转入成人护理的体验：一项定性研究。
J Adv Nurs. 2023 Dec;79(12):4621-4634. doi: 10.1111/jan.15740. Epub 2023 Jun 25.
5
Palliative care experiences of adult cancer patients from ethnocultural groups: a qualitative systematic review protocol.不同种族文化群体成年癌症患者的姑息治疗体验：一项定性系统评价方案
JBI Database System Rev Implement Rep. 2015 Jan;13(1):99-111. doi: 10.11124/jbisrir-2015-1809.
6
Promoting and supporting self-management for adults living in the community with physical chronic illness: A systematic review of the effectiveness and meaningfulness of the patient-practitioner encounter.促进和支持社区中患有慢性身体疾病的成年人进行自我管理：对医患互动的有效性和意义的系统评价。
JBI Libr Syst Rev. 2009;7(13):492-582. doi: 10.11124/01938924-200907130-00001.
7
Exploring the Usability and Acceptability of a Well-Being App for Adolescents Living With Type 1 Diabetes: Qualitative Study.探索一款针对1型糖尿病青少年的健康应用程序的可用性和可接受性：定性研究
JMIR Pediatr Parent. 2023 Dec 22;6:e52364. doi: 10.2196/52364.
8
Knowledge of young people living with type 1 diabetes and their caregivers about its management.青少年 1 型糖尿病患者及其照护者对疾病管理的认知。
Nurs Open. 2023 Apr;10(4):2426-2438. doi: 10.1002/nop2.1498. Epub 2022 Nov 30.
9
What is important for you? A qualitative interview study of living with diabetes and experiences of diabetes care to establish a basis for a tailored Patient-Reported Outcome Measure for the Swedish National Diabetes Register.对你来说什么是重要的？一项关于糖尿病患者生活及糖尿病护理体验的定性访谈研究，旨在为瑞典国家糖尿病登记处制定一份量身定制的患者报告结局测量指标奠定基础。
BMJ Open. 2016 Mar 24;6(3):e010249. doi: 10.1136/bmjopen-2015-010249.
10
Designing a brief and simple intervention to help young people with type 1 diabetes to live well: Protocol for developing a novel intervention with participation from young people.设计一个简短而简单的干预措施，帮助 1 型糖尿病青少年生活得更好：一项新干预措施的制定方案，该方案将有年轻人参与。
PLoS One. 2023 Sep 8;18(9):e0285300. doi: 10.1371/journal.pone.0285300. eCollection 2023.
引用本文的文献
1
Long-term effects of non-pharmacological interventions in adolescents and young adults with type 1 diabetes: A systematic review and meta-analysis.非药物干预对1型糖尿病青少年和青年的长期影响：一项系统评价和荟萃分析。
Worldviews Evid Based Nurs. 2024 Dec;21(6):665-677. doi: 10.1111/wvn.12751. Epub 2024 Nov 4.
2
Reviewing identity development in young people living with Type 1 Diabetes Mellitus.审视1型糖尿病青少年的身份认同发展。
J Adolesc. 2025 Jan;97(1):73-84. doi: 10.1002/jad.12412. Epub 2024 Sep 26.
3
Lifestyle in Emerging Adults with Type 1 Diabetes Mellitus: A Qualitative Systematic Review.1型糖尿病青少年成人的生活方式：一项定性系统综述
Healthcare (Basel). 2024 Jan 25;12(3):309. doi: 10.3390/healthcare12030309.
4
Identification of psychological constructs for a positive psychology intervention to assist with the adjustment to closed loop technology among adolescents living with type 1 diabetes.识别用于积极心理学干预的心理构念，以帮助1型糖尿病青少年适应闭环技术。
Front Psychol. 2023 Oct 13;14:1273586. doi: 10.3389/fpsyg.2023.1273586. eCollection 2023.
5
Living with Type 1 Diabetes as Experienced by Adults with Prolonged Elevated HbA1c: A Qualitative Study.糖化血红蛋白长期升高的成年1型糖尿病患者的生活体验：一项定性研究
Diabetes Ther. 2023 Oct;14(10):1673-1684. doi: 10.1007/s13300-023-01443-z. Epub 2023 Jul 20.
6
Socio-cognitive determinants affecting insulin adherence/non-adherence in late adolescents and young adults with type 1 diabetes: a systematic review protocol.影响1型糖尿病青少年晚期和青年胰岛素依从性/非依从性的社会认知决定因素：一项系统综述方案
J Diabetes Metab Disord. 2022 May 26;21(1):1207-1215. doi: 10.1007/s40200-022-01054-8. eCollection 2022 Jun.
7
How Do the Challenges of Emerging Adulthood Inform our Understanding of Diabetes Distress? An Integrative Review.新兴成年期的挑战如何增进我们对糖尿病困扰的理解？一项综合综述。
Curr Diab Rep. 2020 Apr 23;20(6):21. doi: 10.1007/s11892-020-01301-3.
本文引用的文献
1
A discussion paper on stigmatizing features of diabetes.一篇关于糖尿病污名化特征的讨论文件。
Nurs Open. 2018 Jan 24;5(2):113-119. doi: 10.1002/nop2.112. eCollection 2018 Apr.
2
Introduction: .引言：.
Diabetes Care. 2018 Jan;41(Suppl 1):S1-S2. doi: 10.2337/dc18-Sint01.
3
The Complexities of "Struggling to Live Life".“挣扎求生”的复杂性
Diabetes Educ. 2017 Apr;43(2):206-215. doi: 10.1177/0145721717697245.
4
Being in togetherness: meanings of encounters within primary healtcare setting for patients living with long-term illness.共处：初级医疗保健环境中与慢性病患者相遇的意义。
J Clin Nurs. 2016 Oct;25(19-20):2854-62. doi: 10.1111/jocn.13333. Epub 2016 Jul 7.
5
The Experience of Siblings of Children With Type 1 Diabetes.1型糖尿病患儿兄弟姐妹的经历
Pediatr Nurs. 2015 Nov-Dec;41(6):279-82, 305.
6
Patient Perspectives on Quality of Life With Uncontrolled Type 1 Diabetes Mellitus: A Systematic Review and Qualitative Meta-synthesis.1型糖尿病控制不佳患者对生活质量的看法：系统评价与定性元分析
Ont Health Technol Assess Ser. 2015 Sep 1;15(17):1-29. eCollection 2015.
7
Sample Size in Qualitative Interview Studies: Guided by Information Power.定性访谈研究中的样本量：以信息力为导向
Qual Health Res. 2016 Nov;26(13):1753-1760. doi: 10.1177/1049732315617444. Epub 2016 Jul 10.
8
Risk factors for recurrent admissions with diabetic ketoacidosis: a case-control observational study.糖尿病酮症酸中毒再入院的危险因素：一项病例对照观察性研究。
Diabet Med. 2016 Apr;33(4):523-8. doi: 10.1111/dme.13004. Epub 2015 Dec 7.
9
Fear of hypoglycemia in adults with type 1 diabetes: impact of therapeutic advances and strategies for prevention - a review.1型糖尿病成人患者的低血糖恐惧：治疗进展的影响及预防策略——综述
J Diabetes Complications. 2016 Jan-Feb;30(1):167-77. doi: 10.1016/j.jdiacomp.2015.09.003. Epub 2015 Sep 7.
10
Prevalence of depression in Type 1 diabetes and the problem of over-diagnosis.1型糖尿病中抑郁症的患病率及过度诊断问题。
Diabet Med. 2016 Nov;33(11):1590-1597. doi: 10.1111/dme.12973. Epub 2016 Jan 5.
Zotero 插件