Kristen Krueger, Kansas State University; Jessica D. Cless, Washburn University; and Meghan Dyster, Mollie Reves, Robert Steele, and Briana S. Nelson Goff, Kansas State University.
Intellect Dev Disabil. 2019 Apr;57(2):146-157. doi: 10.1352/1934-9556-57.2.146.
In the current qualitative research study, we focused on understanding the ecological systems, contexts, behaviors, and strategies of parents ( N = 435) advocating for their children with an intellectual and developmental disability diagnosis, specifically Down syndrome (DS). Based on the data analysis, parents of children with DS advocate for their children frequently, in a variety of settings, with different actions, attitudes, motivations, and outcomes. The most common settings where advocacy occurred were primarily school and healthcare systems. The goals of parents often included inclusiveness, equality, and acceptance, whereas a few parents reported advocating due to discrimination and judgment. Implications for further research and professional practice also are described.
在当前的定性研究中，我们专注于了解倡导其患有智力和发育障碍（特指唐氏综合征）儿童的父母（N=435）的生态系统、背景、行为和策略。基于数据分析，患有唐氏综合征的儿童的父母经常在各种环境中采取不同的行动、态度、动机和结果来倡导他们的孩子。倡导活动最常见的环境是学校和医疗保健系统。父母的目标通常包括包容性、平等和接受，而少数父母则表示倡导是因为受到歧视和评判。还描述了进一步研究和专业实践的意义。
