数据、科学与基础设施方面的合作：癌症研究网络的20年历程
Collaborating on Data, Science, and Infrastructure: The 20-Year Journey of the Cancer Research Network.
作者信息
Doria-Rose V Paul, Greenlee Robert T, Buist Diana S M, Miglioretti Diana L, Corley Douglas A, Brown Jeffrey S, Clancy Heather A, Tuzzio Leah, Moy Lisa M, Hornbrook Mark C, Brown Martin L, Ritzwoller Debra P, Kushi Lawrence H, Greene Sarah M
机构信息
Division of Cancer Control and Population Sciences, National Cancer Institute, Bethesda, MD, US.
Marshfield Clinic Research Institute, Marshfield, WI, US.
出版信息
EGEMS (Wash DC). 2019 Mar 29;7(1):7. doi: 10.5334/egems.273.
The Cancer Research Network (CRN) is a consortium of 12 research groups, each affiliated with a nonprofit integrated health care delivery system, that was first funded in 1998. The overall goal of the CRN is to support and facilitate collaborative cancer research within its component delivery systems. This paper describes the CRN's 20-year experience and evolution. The network combined its members' scientific capabilities and data resources to create an infrastructure that has ultimately supported over 275 projects. Insights about the strengths and limitations of electronic health data for research, approaches to optimizing multidisciplinary collaboration, and the role of a health services research infrastructure to complement traditional clinical trials and large observational datasets are described, along with recommendations for other research consortia.
癌症研究网络（CRN）是一个由12个研究小组组成的联盟，每个小组都隶属于一个非营利性综合医疗服务提供系统，该联盟于1998年首次获得资助。CRN的总体目标是在其组成的医疗服务系统内支持和促进合作性癌症研究。本文描述了CRN的20年经验和发展历程。该网络整合了成员的科研能力和数据资源，创建了一个最终支持了超过275个项目的基础设施。文中阐述了关于电子健康数据用于研究的优势和局限性、优化多学科合作的方法，以及健康服务研究基础设施对补充传统临床试验和大型观察数据集的作用，并为其他研究联盟提供了建议。
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