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痴呆症患者入住机构护理时影响其照护者过渡体验的因素:系统评价与元整合

Factors influencing the transition experience of carers for persons with dementia, when the person with dementia moves into residential care: systematic review and meta-synthesis.

作者信息

Pritty Beth, De Boos Danielle, Moghaddam Nima

机构信息

Department of Clinical Psychology, School of Medicine, University of Nottingham, Nottingham, UK.

Department of Clinical Psychology, University of Lincoln, Lincoln, UK.

出版信息

Aging Ment Health. 2020 Sep;24(9):1371-1380. doi: 10.1080/13607863.2019.1602591. Epub 2019 Apr 12.

DOI:10.1080/13607863.2019.1602591
PMID:30977396
Abstract

To understand factors influencing the experience of carers for people with dementia, when that person moves from living in the community to living in residential care. Specifically, we aimed to identify facilitators and inhibitors of carer adjustment during this transition. A systematic search of CINAHL, EMBASE, PubMed, and PsycINFO databases was conducted. Nine qualitative articles published between 2001 and 2017, based on the experiences of 141 carers, were included. Thematic analysis was applied to the data, with the concepts of transition inhibitors and facilitators being used to structure the analytic process. Analysis produced five themes, representing factors that could affect carer experiences of the focal transition-process: modifying the difficulty of this process according to their presence or absence. The themes were (1) , pertaining to the carer feeling connected to the person with dementia and professionals during this transition; (2) , relating to exchange of information between the carer and facility staff or health professionals; (3) , dealing with carer perceptions of the facility and their confidence in the staff; (4) , discussing the meaning the carer made of the admission and the impact this had; and (5) , addressing how carers were affected by the perceived sharing of responsibility for care-provision. A supportive network has a significant role to play in facilitating this transition for carers. However, further research into what carers would find useful during this time is needed.

摘要

为了解痴呆症患者从社区生活转为入住养老院时影响其照护者体验的因素。具体而言,我们旨在确定这一转变过程中促进照护者适应的因素和阻碍因素。我们对CINAHL、EMBASE、PubMed和PsycINFO数据库进行了系统检索。纳入了9篇2001年至2017年间发表的基于141名照护者经历的定性文章。对数据进行了主题分析,运用转变阻碍因素和促进因素的概念来构建分析过程。分析得出了五个主题,代表了可能影响照护者在这一重点转变过程体验的因素:根据这些因素的存在与否来改变这一过程的难度。这些主题分别是:(1) ,与照护者在这一转变过程中感觉与痴呆症患者及专业人员有联系有关;(2) ,与照护者和养老院工作人员或健康专业人员之间的信息交流有关;(3)  ,涉及照护者对养老院的看法及其对工作人员的信心;(4) ,讨论照护者对入住养老院的理解及其产生的影响;(5) ,探讨照护者如何受到护理责任分担观念的影响。一个支持性网络在促进照护者的这一转变方面可发挥重要作用。然而,还需要进一步研究照护者在此期间会认为哪些是有用的。

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