Francis Nick, Hanna Paul
School of Psychology, University of Surrey, Guildford, UK.
J Psychiatr Ment Health Nurs. 2022 Feb;29(1):116-129. doi: 10.1111/jpm.12698. Epub 2020 Oct 27.
WHAT IS KNOWN ON THE SUBJECT?: Dementia affects an increasing number of people and a person with dementia requires significant levels of care. Dementia care is often delivered by family members. Caring for someone with dementia places significant demand on the carer and support for the carer is often needed. WHAT THE PAPER ADDS TO EXISTING KNOWLEDGE?: Research has been conducted into caregivers' experiences of caring for someone with dementia, but a synthesis of findings for studies from the UK is needed to collate the research evidence and provide an account of the common trends within the existing research. This paper adds to existing knowledge by highlighting the key difficulties experienced by carers of a person with dementia in their caring role and their experiences with support services across the existing research evidence. WHAT ARE THE IMPLICATIONS FOR PRACTICE?: Improvements to the process of dementia assessment and the process of receiving a dementia diagnosis are needed. Information and support needs to be more accessible for the carer of a person with dementia Cultural differences need to be acknowledged in the support and information offered to carers of a person with dementia. ABSTRACT: Aim To understand the experiences of informal carers' of individuals with dementia in the UK when engaging with services for support in their caring role. Methods Following the PRISMA guidelines, a qualitative systematic literature review was carried out. Six Internet databases were searched. Results were screened, and eligible studies were appraised using Critical Appraisal Skills Programme (CASP, 2019) and data synthesized using Evan & Pearson (2001) and Evans (2002). Results The search returned 231 records, 11 were selected for critical appraisal and data synthesis. Four main themes (information for carers, process of diagnosing dementia, difficulties accessing support and cultural differences of experiences of services) were extracted. Discussion Carers experience services as providing inadequate support for the Person with Dementia (PwD) and themselves for support relating to dementia. Difficulties in receiving information and support were experienced from before diagnosis to end-of-life (EoL) care. Additionally, cultural differences were found in carers' experiences. Implications for practice The provision of and access to dementia support should be improved; more information for carers about dementia and dementia services is needed; cultural differences need to be appreciated in the support and information offered.
痴呆症影响着越来越多的人，患有痴呆症的人需要大量的护理。痴呆症护理通常由家庭成员提供。照顾患有痴呆症的人对护理人员提出了很高的要求，因此通常需要为护理人员提供支持。
已经对护理人员照顾患有痴呆症患者的经历进行了研究，但需要对来自英国的研究结果进行综合，以整理研究证据并阐述现有研究中的共同趋势。本文通过强调痴呆症患者的护理人员在其护理角色中所经历的关键困难以及他们在现有研究证据中获得支持服务的经历，对现有知识进行了补充。
需要改进痴呆症评估过程和接受痴呆症诊断的过程。对于痴呆症患者的护理人员而言，信息和支持需要更容易获取。在为痴呆症患者的护理人员提供支持和信息时，需要认识到文化差异。
目的 了解英国痴呆症患者的非正式护理人员在寻求支持服务以履行其护理职责时的经历。方法 遵循PRISMA指南进行了一项定性系统文献综述。搜索了六个互联网数据库。对结果进行筛选，并使用批判性评估技能计划（CASP，2019）对符合条件的研究进行评估，并使用Evan & Pearson（2001）和Evans（2002）对数据进行综合分析。结果 搜索返回231条记录，其中11条被选作批判性评估和数据综合分析。提取了四个主要主题（护理人员信息、痴呆症诊断过程、获得支持的困难以及服务体验的文化差异）。讨论 护理人员认为服务在为痴呆症患者及其自身提供与痴呆症相关的支持方面存在不足。从诊断前到临终关怀阶段，在获取信息和支持方面都存在困难。此外，护理人员的经历中还存在文化差异。对实践的启示 应改善痴呆症支持服务的提供和获取；需要为护理人员提供更多关于痴呆症和痴呆症服务的信息；在提供支持和信息时需要认识到文化差异。
