用于痴呆患者健康相关生活质量的自我报告（DEMQOL）和照顾者代理（DEMQOL-PROXY）测量的日本版的可靠性和有效性。

Reliability and validity of the Japanese version of a self-report (DEMQOL) and carer proxy (DEMQOL-PROXY) measure of health-related quality of life in people with dementia.

机构信息

Research Team for Promoting Independence and Mental Health, Tokyo Metropolitan Institute of Gerontology, Tokyo, Japan.

Faculty of Human Sciences, University of Tsukuba, Tsukuba, Japan.

出版信息

Geriatr Gerontol Int. 2019 Jun;19(6):487-491. doi: 10.1111/ggi.13646. Epub 2019 Apr 14.

DOI:10.1111/ggi.13646

PMID:30983109

Abstract

AIM

The DEMQOL is a self-report measure of subjective quality of life of people with dementia, and the DEMQOL-PROXY is a carer proxy version. The study aimed to develop Japanese versions of the DEMQOL and DEMQOL-PROXY, and test their reliability and validity.

METHODS

Translation, reverse translation and equivalency evaluation by the original author were used to develop Japanese versions of the DEMQOL (DEMQOL-J) and DEMQOL-PROXY (DEMQOL-PROXY-J). Interviews were carried out with 90 pairs of people with dementia and their carers to assess their quality of life using the DEMQOL-J, DEMQOL-PROXY-J and other quality of life scales. Internal consistency was evaluated using Cronbach's alpha. Test-retest reliabilities were evaluated using intraclass correlation coefficients. Criterion validity was determined using Pearson's correlation coefficient.

RESULTS

Data from 87 pairs who completed the interviews were analyzed. Cronbach's alphas for the DEMQOL-J and DEMQOL-PROXY-J were 0.930 and 0.927, respectively. For 27 pairs who were re-interviewed, the intraclass correlation coefficients for the DEMQOL-J and DEMQOL-PROXY-J were 0.942 (P < 0.001) and 0.942 (P < 0.001), respectively. Both the DEMQOL-J and DEMQOL-PROXY-J correlated significantly with other quality of life scales (the Quality of Life - Alzheimer's Disease instrument, the EuroQol-5D-3L and the World Health Organization Well-Being Index-5-J; P < 0.001). There was also a significant correlation between the DEMQOL-J and the DEMQOL-PROXY-J (r = 0.645, P ≤ 0.001).

CONCLUSIONS

The DEMQOL-J and DEMQOL-PROXY-J are reliable and valid measures of dementia-specific quality of life. Geriatr Gerontol Int 2019; 19: 487-491.

摘要

目的

DEMQOL 是一种用于评估痴呆患者主观生活质量的自评量表，而 DEMQOL-PROXY 则是一种由照护者代理评估的版本。本研究旨在开发日语版的 DEMQOL（DEMQOL-J）和 DEMQOL-PROXY（DEMQOL-PROXY-J），并检验其信度和效度。

方法

采用原作者翻译、反向翻译和等效性评估的方法，开发了日语版的 DEMQOL（DEMQOL-J）和 DEMQOL-PROXY（DEMQOL-PROXY-J）。对 90 对痴呆患者及其照护者进行访谈，使用 DEMQOL-J、DEMQOL-PROXY-J 和其他生活质量量表评估他们的生活质量。采用克朗巴赫 α系数评估内部一致性。采用组内相关系数评估重测信度。采用皮尔逊相关系数评估效标效度。

结果

对完成访谈的 87 对患者进行了数据分析。DEMQOL-J 和 DEMQOL-PROXY-J 的克朗巴赫 α系数分别为 0.930 和 0.927。对 27 对再次接受访谈的患者进行分析，DEMQOL-J 和 DEMQOL-PROXY-J 的组内相关系数分别为 0.942（P<0.001）和 0.942（P<0.001）。DEMQOL-J 和 DEMQOL-PROXY-J 与其他生活质量量表（痴呆患者生活质量量表、欧洲五维健康量表-3 维度简表和世界卫生组织幸福度量表-5 维度简表）均显著相关（P<0.001）。DEMQOL-J 和 DEMQOL-PROXY-J 之间也存在显著相关性（r=0.645，P≤0.001）。