验证痴呆症患者生活质量测量的中文版 - 代理在养老院居民中的应用。
Validation of the Chinese Version of Dementia Quality of Life Measure - Proxy in Care Home Residents with Dementia.
机构信息
School of Medical and Health Sciences, Tung Wah College, Hong Kong SAR, China.
Department of Occupational Therapy, The Society for the Relief of Disabled Children, Hong Kong SAR, China.
出版信息
East Asian Arch Psychiatry. 2021 Mar;31(1):9-12. doi: 10.12809/eaap2019.
OBJECTIVE
To evaluate psychometric properties of the Chinese version of Dementia Quality of Life Measure - Proxy (C-DEMQoL-Proxy).
METHODS
Care home residents aged ≥60 years who were diagnosed with dementia or demonstrated impairment in cognition were recruited from four care facilities in Hong Kong. Caregivers of these participants were also invited to participate. The original DEMQoL-Proxy was translated into Chinese (Cantonese) by a trained translator. The forward-translated version was reviewed by an expert panel of six experienced healthcare professionals. Revisions were made based on comments. The instrument was back-translated to English to check whether further changes were necessary. Demographic data (age, sex, type and severity of dementia, and Mini-Mental State Examination [MMSE] score) were collected from medical records of participants with dementia. Caregivers were interviewed by an occupational therapist or personnel supervised by the occupational therapist using the C-DEMQoL-Proxy and the Chinese version of Quality of Life-Alzheimer's Disease-Proxy (C-QoL-AD-Proxy). Acceptability, reliability, and validity of the C-DEMQoL-Proxy were evaluated using standard psychometric methods.
RESULTS
90 individuals (82.2% women) with dementia aged 72 to 102 years were included. Their diagnosis included Alzheimer's disease (23.3%), vascular dementia (15.6%), mixed and other types of dementias (51.1%), and missing (10%). Severity was mild in 12.2%, moderate in 62.2%, and severe in 25.6%. The mean MMSE score was 12.0 ± 4.9. 20% of the caregivers were family members and the rest were professional carers. The C-DEMQoL-Proxy had good acceptability, with no floor or ceiling effects or missing data. It had good internal consistency (Cronbach alpha = 0.91) and test-retest reliability (intraclass correlation coefficients = 0.83). It was mildly correlated with C-QoL-AD-Proxy (r = 0.29, p < 0.01). Age and sex were not correlated with C-DEMQoL-Proxy scores. C-DEMQoL-Proxy scores were not significantly different between dementia types, severity levels, or between those with higher or lower MMSE scores.
CONCLUSION
The C-DEMQoL-Proxy is a valid and reliable instrument to assess health-related quality of life in individuals with dementia.
目的
评价痴呆症生活质量测量代理（C-DEMQoL-Proxy）中文版的心理计量学特性。
方法
从香港的 4 家养老院中招募了年龄≥60 岁、被诊断为痴呆症或认知功能受损的养老院居民，以及这些参与者的护理人员也被邀请参加。经过培训的翻译人员将原始的 DEMQoL-Proxy 翻译为中文（粤语）。由 6 名经验丰富的医疗保健专业人员组成的专家组对正向翻译版本进行了审查。根据意见进行了修订。该工具被反向翻译为英文，以检查是否需要进一步修改。从参与者的病历中收集了痴呆症患者的人口统计学数据（年龄、性别、痴呆症类型和严重程度以及简易精神状态检查[MMSE]评分）。职业治疗师或由职业治疗师监督的人员使用 C-DEMQoL-Proxy 和中文版生活质量-阿尔茨海默病-代理（C-QoL-AD-Proxy）对护理人员进行了访谈。使用标准心理计量学方法评估 C-DEMQoL-Proxy 的可接受性、信度和效度。
结果
共有 90 名（82.2%为女性）患有年龄在 72 至 102 岁的痴呆症的个体被纳入研究。他们的诊断包括阿尔茨海默病（23.3%）、血管性痴呆（15.6%）、混合和其他类型的痴呆症（51.1%）和缺失（10%）。严重程度轻度占 12.2%，中度占 62.2%，重度占 25.6%。平均 MMSE 评分为 12.0±4.9。20%的护理人员为家庭成员，其余为专业护理人员。C-DEMQoL-Proxy 具有良好的可接受性，无地板或天花板效应或缺失数据。它具有良好的内部一致性（Cronbach alpha = 0.91）和重测信度（组内相关系数= 0.83）。它与 C-QoL-AD-Proxy 呈轻度相关（r = 0.29，p < 0.01）。年龄和性别与 C-DEMQoL-Proxy 评分无关。C-DEMQoL-Proxy 评分在痴呆症类型、严重程度或 MMSE 评分较高或较低的人群之间无显著差异。
结论
C-DEMQoL-Proxy 是一种评估痴呆症个体健康相关生活质量的有效且可靠的工具。
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