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肌痛性脑脊髓炎/慢性疲劳综合征(ME/CFS)评估:医疗服务提供者的案例研究

Assessment of ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome): A Case Study for Health Care Providers.

作者信息

Brimmer Dana J, Jones James F, Boneva Roumiana, Campbell Charlotte, Lin Jin-Mann S, Unger Elizabeth R

机构信息

Behavioral Visiting Scientist and Contractor, Chronic Viral Diseases Branch, Centers For Disease Control And Prevention.

Guest Researcher, Chronic Viral Diseases Branch, Centers for Disease Control and Prevention.

出版信息

MedEdPORTAL. 2016 Dec 31;12:10527. doi: 10.15766/mep_2374-8265.10527.

Abstract

INTRODUCTION

Over a million adults in the U.S. are affected by chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME). A debilitating illness, ME/CFS is accompanied by profound fatigue that is not relieved by rest and affects daily activities. Symptoms include postexertional malaise, cognitive problems, unrefreshing sleep, and pain. This course provides tools to teach medical, physician assistant, and nursing students to recognize, diagnose, and manage patients with ME/CFS.

METHODS

The student is expected to view the provider-to-provider video and the PowerPoint slide curriculum, which describe the steps for evaluation. The video depicts two physicians conferring about ME/CFS and addresses the challenges of making a diagnosis. The slide curriculum shows the different ME/CFS symptoms and case definitions and how to apply them using a case study. Medical, physician assistant, and nursing students were recruited to evaluate the course and viewed it either online or in a campus education center.

RESULTS

Results showed that students met learning objectives and showed increases from pre- to posttest evaluation in their understanding of the difficulties of diagnosing ME/CFS and managing the illness. In addition to knowledge, student attitudes towards ME/CFS changed, with more empathy towards patients and the awareness that ME/CFS requires frequent communication and reevaluation of patients' symptoms.

DISCUSSION

Strategies of how to manage ME/CFS for the patient and manage time constraints during visits with ME/CFS patients are discussed.

摘要

引言

在美国,超过100万成年人受到慢性疲劳综合征(CFS)的影响,该综合征也被称为肌痛性脑脊髓炎(ME)。ME/CFS是一种使人衰弱的疾病,伴有严重疲劳,休息无法缓解,且会影响日常活动。症状包括运动后不适、认知问题、睡眠无恢复感以及疼痛。本课程提供工具,教导医学、医师助理和护理专业的学生识别、诊断和管理ME/CFS患者。

方法

学生需观看提供者之间的视频以及描述评估步骤的PowerPoint幻灯片课程。视频展示了两位医生就ME/CFS进行会诊的情况,并探讨了诊断方面的挑战。幻灯片课程展示了ME/CFS的不同症状、病例定义以及如何通过一个案例研究来应用这些内容。招募了医学、医师助理和护理专业的学生对该课程进行评估,他们可以在线观看或在校园教育中心观看。

结果

结果显示,学生达到了学习目标,从测试前到测试后的评估表明,他们对诊断ME/CFS的困难以及管理该疾病的理解有所提高。除了知识方面,学生对ME/CFS的态度也发生了变化,对患者更具同理心,并且意识到ME/CFS需要频繁与患者沟通并重新评估其症状。

讨论

讨论了如何为患者管理ME/CFS以及在与ME/CFS患者就诊期间如何应对时间限制的策略。

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