School of Psychology, University of Ottawa, Ottawa, Ontario, Canada.
School of Psychology, Children's Hospital of Eastern Ontario Research Institute, University of Ottawa, Ottawa, Ontario, Canada.
J Appl Res Intellect Disabil. 2019 Sep;32(5):1116-1128. doi: 10.1111/jar.12601. Epub 2019 Apr 16.
This study explored the way families support self-determination in young adults with intellectual and developmental disabilities (IDD) during life transitions.
Qualitative case studies were conducted with two Canadian families who participated in semi-structured interviews and ethnographic observations every quarter for one year. Analyses were informed by family systems theory and self-determination theory.
Families considered the needs and preferences of the young adults with IDD, suggesting individualized approaches for balancing independence and protection. Families set short-term and long-term goals for increased independence, scaffolded the learning of new skills and collaborated on important choices. Collaboration occurred to the extent that all family members perceived agency in planning and implementing transitions.
Families supported the young adults with IDD in their psychological needs for competence, relatedness and autonomy, which allowed them to experience self-determination. Findings have implications for supporting self-determination and transition planning in the family system.
本研究探讨了家庭在年轻人智力和发展障碍（IDD）生活过渡期间支持其自主决策的方式。
对来自加拿大的两个家庭进行了定性案例研究，这些家庭在一年内每季度接受一次半结构化访谈和民族志观察。分析受到家庭系统理论和自主决策理论的启发。
家庭考虑了有 IDD 的年轻人的需求和偏好，这表明需要采取个性化的方法来平衡独立性和保护。家庭为增加独立性制定了短期和长期目标，为新技能的学习提供了支持，并共同做出重要选择。只要所有家庭成员都认为自己有能力参与规划和实施过渡，就会进行协作。
家庭满足了有 IDD 的年轻人在能力、关系和自主性方面的心理需求，使他们能够体验到自主决策。研究结果对支持家庭系统中的自主决策和过渡规划具有启示意义。
