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家长倡导在自闭症青少年自我决定中的作用。

The Role of Parent Advocacy in Autistic Youths' Self-Determination.

作者信息

Moser Carly, Burke Meghan M, DaWalt Leann Smith, Taylor Julie Lounds

机构信息

Carly Moser, Vanderbilt University Medical Center; Meghan M. Burke, Vanderbilt University; Leann Smith DaWalt, University of Wisconsin-Madison; and Julie Lounds Taylor, Vanderbilt University Medical Center.

出版信息

Am J Intellect Dev Disabil. 2025 Mar 1;130(2):116-130. doi: 10.1352/1944-7558-130.2.116.

DOI:10.1352/1944-7558-130.2.116
PMID:39999869
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11951422/
Abstract

Parent advocacy is important for the transition outcomes of autistic youth. However, it is unclear whether parent advocacy efforts support or stifle youths' self-determination. This study examined concurrent (n = 180) and longitudinal (n = 134) associations between parent advocacy and transition-aged autistic youths' self-determination (as reported by parents) and explored whether individual and family characteristics moderated this relationship. Cross-sectional results indicated a positive association between parent advocacy and self-determination for youth with higher adaptive behavior, lower externalizing behavior, and higher parent-child relationship quality. Longitudinal results demonstrated that change in parent advocacy related to change in self-determination for youth with lower adaptive behavior and higher externalizing behavior. Findings suggest that targeting parent advocacy could enhance self-determination skills in autistic youth.

摘要

家长倡导对于自闭症青少年的过渡结果很重要。然而,尚不清楚家长的倡导努力是支持还是抑制了青少年的自我决定能力。本研究考察了家长倡导与过渡年龄段自闭症青少年自我决定能力(由家长报告)之间的同步关联(n = 180)和纵向关联(n = 134),并探讨了个体和家庭特征是否调节了这种关系。横断面结果表明,对于适应性行为较高、外化行为较低且亲子关系质量较高的青少年,家长倡导与自我决定能力之间存在正相关。纵向结果表明,对于适应性行为较低且外化行为较高的青少年,家长倡导的变化与自我决定能力的变化相关。研究结果表明,针对家长倡导可以提高自闭症青少年的自我决定能力。

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Autism Res. 2023 Oct;16(10):1976-1988. doi: 10.1002/aur.3001. Epub 2023 Aug 8.
3
The role of parental advocacy in addressing service disparities for transition-aged youth on the autism spectrum.父母倡导在解决自闭症谱系青少年过渡时期服务差距中的作用。
Autism. 2022 May;26(4):1001-1006. doi: 10.1177/13623613211057660. Epub 2021 Nov 29.
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Family Role in the Development of Self-Determination for Youth With Intellectual and Developmental Disabilities: A Scoping Review.家庭在智力和发育障碍青年自我决定发展中的作用:一项范围综述
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