Nasimi Maryam, Abedini Robabe, Daneshpazjooh Maryam, Esmaeilpour Afsane, Ghaedi Forugh, Teimourpour Amir, Abtahi Shahab
Razi Hospital, Department of Dermatology, Tehran University of Medical Sciences, Tehran, Iran.
Department of Epidemiology and Biostatistics, School of Public Health, Tehran University of Medical Sciences, Tehran, Iran.
Int J Womens Dermatol. 2018 Nov 19;5(2):96-99. doi: 10.1016/j.ijwd.2018.08.012. eCollection 2019 Jun.
Little is known about illness perception in patients with pemphigus vulgaris (PV). We designed a cross-sectional study to clarify the beliefs about PV.
A total of 100 patients with PV (45 men, 55 women) completed the Illness Perception Questionnaire-Revised to assess beliefs about seven aspects of illness perception, including chronicity, recurrence, consequences, self and medicine role in controlling illness, coherence, and emotional representation. The relationship between illness perception and clinical and demographic variables was evaluated.
Patients viewed PV as a chronic and cyclical disease with important impression on their life and emotions. Patients had a good understanding of the disease and supposed an acceptable role for themselves and medical treatment. Interestingly, the clinical subtype and severity of the disease did not influence any aspect of illness perception, but some differences on the basis of demographic data were demonstrated.
Our patients had a relatively good understanding of their illness and a correct perception about chronicity and the cyclical identity of illness. The patients believed that their life and emotions had been strongly influenced by the disease but were hopeful for a cure. Because correction of misconceptions about a disease may improve treatment outcomes, an assessment of patients' illness perception may be useful to try and modify perception.
寻常型天疱疮（PV）患者的疾病认知情况鲜为人知。我们设计了一项横断面研究以阐明对PV的认知。
总共100例PV患者（45例男性，55例女性）完成了修订后的疾病认知问卷，以评估对疾病认知七个方面的信念，包括慢性、复发、后果、自我及药物在控制疾病中的作用、连贯性和情感表征。评估了疾病认知与临床及人口统计学变量之间的关系。
患者将PV视为一种慢性周期性疾病，对其生活和情绪有重要影响。患者对疾病有较好的理解，并认为自身及医疗治疗发挥了可接受的作用。有趣的是，疾病的临床亚型和严重程度并未影响疾病认知的任何方面，但基于人口统计学数据显示出一些差异。
我们的患者对自身疾病有相对较好的理解，对疾病的慢性和周期性特征有正确认知。患者认为疾病对其生活和情绪有强烈影响，但对治愈抱有希望。由于纠正对疾病的误解可能改善治疗效果，评估患者的疾病认知可能有助于尝试并改变认知。
