Castiblanco-Montañez Ruth Alexandra, Buitrago-Garcia Diana, Arévalo Velandia Adriana, Garzón-Cepeda Julián David, Rodríguez-Florido Fernando, Sánchez Vanegas Guillermo, Santos-Moreno Pedro
Care Perspectives Research Group, Faculty of Nursing, Fundación Universitaria de Ciencias de la Salud - FUCS, Bogotá, Colombia.
Clinical Epidemiology Graduate Program, Fundación Universitaria de Ciencias de la Salud - FUCS, Bogotá, Colombia.
J Multidiscip Healthc. 2023 Feb 22;16:483-492. doi: 10.2147/JMDH.S380001. eCollection 2023.
Rheumatoid arthritis is a chronic inflammatory disease diagnosed in a productive stage of life. Patients with RA experience changes in their musculoskeletal system, overall health and quality of life. It has been identified that patients with RA do not have appropriate knowledge about their condition. Educational programs can provide new knowledge, accompaniment, and closer follow-up to improve empowerment and quality of life in patients with RA.
To describe rheumatoid arthritis patients' experiences, perceptions, and expectations when enrolling on a multicomponent educational program in a specialized RA setting.
A qualitative study was done. Patients with RA who attended a specialized center and enrolled in an educational program participated in two focus groups. The focus group discussions and the interviews were recorded, transcribed verbatim, analyzed, and emerging themes were constructed.
Thirty-one participants were included in the focus groups. The median age was 60 years IQR (54-67), 92% were female. Two relevant categories emerged: first, the experience of being diagnosed with RA. Second, the program's ability to empower participants with knowledge and the possibility of transferring knowledge to other patients with the same condition. In addition, patients gave a high score to the expectations regarding the educational program.
Understanding patients' expectations when enrolling in an educational program allows educators and clinicians to understand their motivations to create tailored programs that can contribute to acquiring empowerment in the educational process and managing their disease. Stakeholders should consider patients' expectations when implementing these interventions for patients with RA to adapt the intervention according to the patient's context and needs, which will directly affect the patient's adherence and lead to better use and allocation of resources for educational activities.
类风湿性关节炎是一种在人生活跃阶段被诊断出的慢性炎症性疾病。类风湿性关节炎患者的肌肉骨骼系统、整体健康状况和生活质量都会发生变化。据发现，类风湿性关节炎患者对自身病情没有足够的了解。教育项目可以提供新知识、陪伴以及更密切的随访，以增强类风湿性关节炎患者的能力并改善其生活质量。
描述类风湿性关节炎患者在专门的类风湿性关节炎环境中参加多组分教育项目时的经历、看法和期望。
开展了一项定性研究。在一个专门中心就诊并参加教育项目的类风湿性关节炎患者参与了两个焦点小组。焦点小组讨论和访谈进行了录音、逐字转录、分析，并构建了新出现的主题。
焦点小组纳入了31名参与者。年龄中位数为60岁，四分位距为54 - 67岁，92%为女性。出现了两个相关类别：第一，被诊断为类风湿性关节炎的经历。第二，该项目赋予参与者知识的能力以及将知识传授给其他患有相同疾病患者的可能性。此外，患者对该教育项目的期望给出了高分。
了解患者参加教育项目时的期望使教育工作者和临床医生能够理解他们的动机，从而创建量身定制的项目，这有助于在教育过程中增强患者能力并管理他们的疾病。利益相关者在为类风湿性关节炎患者实施这些干预措施时应考虑患者的期望，以便根据患者的情况和需求调整干预措施，这将直接影响患者的依从性，并导致更好地利用和分配教育活动资源。
