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土耳其白癜风患者对自身病情的认知、信念和看法。

Knowledge, beliefs, and perceptions of Turkish vitiligo patients regarding their condition.

作者信息

Topal Ilteris Oguz, Duman Hatice, Goncu Ozgur Emek Kocaturk, Durmuscan Mustafa, Gungor Sule, Ulkumen Pelin Kuteyla

机构信息

Okmeydani Training and Research Hospital - Istanbul, Turkey.

Adana Public Health Laboratory - Adana, Turkey.

出版信息

An Bras Dermatol. 2016 Nov-Dec;91(6):770-775. doi: 10.1590/abd1806-4841.20165060.

DOI:10.1590/abd1806-4841.20165060
PMID:28099599
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5193188/
Abstract

BACKGROUND

: Vitiligo is an acquired pigmentary skin disorder that affects 0.5% to 2.0% of the population.

OBJECTIVE

: Patients' knowledge, opinions, and attitudes about vitiligo were evaluated.

METHODS

: The team conducted a cross-sectional, descriptive, prospective study between June 2014 and May 2015. The study included 100 patients aged over 12 years who were diagnosed with vitiligo. A questionnaire including items on knowledge, opinions, and beliefs about vitiligo and the Illness Perception Questionnaire (IPQ) were filled out by the patients, and the results were analyzed.

RESULTS

: In total, 100 (58 female, 42 male) patients were included in the study. Of them, 74% knew the name of their disease, 90% thought that vitiligo was not contagious, 48% reported that they obtained information on the disease from a doctor, and 69% believed they had adequate information on vitiligo. Eighty percent reported no negative effects from vitiligo on relationships with friends or family. It was believed that stress, excessive sun exposure, and heredity were causes of vitiligo, according to 84%, 37%, and 22% of the patients, respectively. Thirty-six patients (36%) believed that their illness was a serious disease and 35% deemed that it did not have a major impact on their lives.

CONCLUSIONS

: Our results show that vitiligo patients were generally highly aware of their condition. The disease did not negatively affect patient opinions or attitudes about vitiligo. The authors believe that improving patient-physician communication will impact positively on the course of the disease.

摘要

背景

白癜风是一种获得性色素性皮肤病,影响着0.5%至2.0%的人群。

目的

评估患者对白癜风的认知、看法和态度。

方法

研究团队在2014年6月至2015年5月期间进行了一项横断面、描述性、前瞻性研究。该研究纳入了100名年龄超过12岁且被诊断为白癜风的患者。患者填写了一份包括有关白癜风的知识、看法和信念的问卷以及疾病认知问卷(IPQ),并对结果进行了分析。

结果

该研究共纳入100名患者(58名女性,42名男性)。其中,74%知道自己所患疾病的名称,90%认为白癜风不具有传染性,48%报告称他们从医生那里获得了有关该疾病的信息,69%认为自己对白癜风有足够的了解。80%报告称白癜风对其与朋友或家人的关系没有负面影响。分别有84%、37%和22%的患者认为压力、过度日晒和遗传是白癜风的病因。36名患者(36%)认为自己的疾病是一种严重疾病,35%认为它对自己的生活没有重大影响。

结论

我们的结果表明,白癜风患者通常对自己的病情有较高的认知。该疾病对患者对白癜风的看法或态度没有负面影响。作者认为改善医患沟通将对疾病的进程产生积极影响。

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Prevalence of depression in vitiligo patients.白癜风患者中抑郁症的患病率。
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Int J Dermatol. 2010 Oct;49(10):1141-5. doi: 10.1111/j.1365-4632.2010.04514.x.
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What patients with vitiligo believe about their condition.白癜风患者对自身病情的看法。
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