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迁移思维:姑息治疗在跨文化癌症治疗中的作用:定性分析。

Migrate your mind: the role of palliative care in transcultural cancer treatment : A qualitative analysis.

机构信息

Clinical Division of Palliative Care, Department of Internal Medicine I, Medical University of Vienna, Waehringer Guertel 18-20, 1090, Vienna, Austria.

Clinical Division of Oncology, Department of Internal Medicine I, Sankt Josef Hospital Vienna, Auhofstraße 189, 1130, Vienna, Austria.

出版信息

Wien Klin Wochenschr. 2019 May;131(9-10):191-199. doi: 10.1007/s00508-019-1474-9. Epub 2019 Apr 17.

DOI:10.1007/s00508-019-1474-9
PMID:30997564
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6520309/
Abstract

BACKGROUND

In increasingly multi-ethnic societies fostering cultural awareness and integration of immigrants is not only a political duty but also an obligation for social and healthcare systems. Importantly, cultural beliefs and needs strongly impact on the quality of life of cancer patients and may become even more crucial at the end of life. However, to date, ethnic and cultural aspects of palliative care are insufficiently researched.

METHODS

This qualitative study at the Medical University of Vienna included 21 staff members from different disciplines in oncology and palliative care working with patients with various cultural backgrounds at the end of life. Semi-structured interviews were performed to gain insights into specific aspects of palliative care that are important in the clinical encounter with terminally ill cancer patients with migrant backgrounds and their relatives.

RESULTS

Interviews revealed specific aspects of palliative care, which fell into four fundamental categories and were all perceived as beneficial in the clinical encounter with migrant clients: (A) structural and (B) personal conditions of the palliative care setting, (C) specific care and treatment intentions and (D) personnel requirements and attitudes.

CONCLUSION

This study revealed first insights into possibilities and prospects of transcultural palliative care for migrants and their relatives. The results might have important implications for the end of life care in this growing population.

摘要

背景

在日益多元化的社会中,培养移民的文化意识和融合不仅是政治责任,也是社会和医疗保健系统的义务。重要的是,文化信仰和需求强烈影响癌症患者的生活质量,在生命末期甚至可能变得更加关键。然而,迄今为止,姑息治疗的种族和文化方面的研究还不够充分。

方法

这项在维也纳医科大学进行的定性研究包括来自肿瘤学和姑息治疗不同学科的 21 名工作人员,他们在生命末期与具有不同文化背景的患者一起工作。进行了半结构化访谈,以深入了解姑息治疗的具体方面,这些方面在与有移民背景的终末期癌症患者及其亲属的临床接触中非常重要。

结果

访谈揭示了姑息治疗的具体方面,这些方面分为四个基本类别,在与移民客户的临床接触中都被认为是有益的:(A)姑息治疗环境的结构和(B)个人条件,(C)特定的护理和治疗意图,以及(D)人员要求和态度。

结论

这项研究首次揭示了为移民及其亲属提供跨文化姑息治疗的可能性和前景。研究结果可能对这一不断增长的人群的临终关怀具有重要意义。

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J Palliat Med. 2017 Aug;20(8):857-861. doi: 10.1089/jpm.2017.0061. Epub 2017 Apr 7.
2
Pushing boundaries-culture-sensitive care in oncology and palliative care: a qualitative study.突破界限——肿瘤学与姑息治疗中的文化敏感护理:一项定性研究
Psychooncology. 2017 Jun;26(6):763-769. doi: 10.1002/pon.4217. Epub 2016 Aug 12.
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Are audio recordings the answer? - a pilot study of a communication intervention for non-English speaking patients with cancer.
Psychooncology. 2016 Oct;25(10):1237-1240. doi: 10.1002/pon.4193. Epub 2016 Jul 8.
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[Prevention among migrants: Participation, migrant sensitive strategies and programme characteristics].[移民中的预防:参与、对移民敏感的策略及项目特征]
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Utilisation of psychosocial and informational services in immigrant and non-immigrant German cancer survivors.德国移民和非移民癌症幸存者对心理社会及信息服务的利用情况。
Psychooncology. 2015 Aug;24(8):919-25. doi: 10.1002/pon.3742. Epub 2014 Dec 19.
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Culture is a priority for research in end-of-life care in Europe: a research agenda.文化是欧洲临终关怀研究的优先事项:研究议程。
J Pain Symptom Manage. 2012 Aug;44(2):285-94. doi: 10.1016/j.jpainsymman.2011.09.013. Epub 2012 Jun 5.
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Cultural competence in end-of-life care: terms, definitions, and conceptual models from the British literature.临终关怀中的文化能力:英国文献中的术语、定义和概念模型。
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9
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Psychooncology. 2012 May;21(5):496-504. doi: 10.1002/pon.1923. Epub 2011 Feb 23.
10
The influence of culture on home-based family caregiving at end-of-life: a case study of Dutch reformed family care givers in Ontario, Canada.文化对临终家庭护理的影响:以加拿大安大略省荷兰改革派家庭护理者为例的案例研究。
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