Instituto ITACA, Universitat Politècnica de València, Valencia, Spain.
Unidad Mixta de Reingeniería de Procesos Sociosanitarios, Instituto de Investigación Sanitaria del Hospital Universitario y Politecnico La Fe, Valencia, Spain.
JMIR Mhealth Uhealth. 2019 Apr 18;7(4):e13362. doi: 10.2196/13362.
Remote care services and patient empowerment have boosted mobile health (mHealth). A study of user needs related to mHealth for pediatric cystic fibrosis (PCF) identified the set of preferred features mobile apps should support; however, the potential use of PCF apps and their suitability to fit into PCF clinical management remains unexplored.
We examine whether PCF holds potential for the implementation of mHealth care.
The study is based on a literature review and qualitative analysis of content and was conducted in two parts: (1) we reviewed scientific and gray literature to explore how European countries manage PCF and conducted a qualitative study of 6 PCF units and (2) we performed a systematic review of apps available in the myhealthapps.net repository searching for cystic fibrosis (CF) management and nutrition apps, which we analyzed for characteristics, business models, number of downloads, and usability.
European CF routine care guidelines are acknowledged in most European countries, and treatments are fully covered in almost all countries. The majority of teams in CF units are interdisciplinary. With respect to the systematic review of apps, we reviewed 12 apps for CF management and 9 for general nutrition management in the myhealthapps.net directory. All analyzed apps provided functionalities for recording aspects related to the disease and nutrition such as medication, meals, measurements, reminders, and educational material. None of the apps reviewed in this study supported pancreatic enzyme replacement therapy. CF apps proved to be less appealing and usable than nutrition apps (2.66 [SD 1.15] vs 4.01 [SD 0.90]; P<.001, z-value: -2.6). User needs detected in previous research are partially matched by current apps for CF management.
The health care context for PCF is a unique opportunity for the adoption of mHealth. Well-established clinical guidelines, heterogeneous clinical teams, and coverage by national health care systems provide a suitable scenario for the use of mHealth solutions. However, available apps for CF self-management do not cover essential aspects such as nutrition and education. To increase the adoption of mHealth for CF self-management, new apps should include these features.
INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): RR2-10.1136/bmjopen-2016-014931.
远程护理服务和患者赋权推动了移动医疗（mHealth）的发展。一项针对儿科囊性纤维化（PCF）患者 mHealth 用户需求的研究确定了移动应用程序应支持的首选功能集；然而，PCF 应用程序的潜在用途及其是否适合 PCF 临床管理仍有待探索。
我们研究 PCF 是否具有实施移动医疗护理的潜力。
本研究基于文献综述和内容的定性分析，分为两部分进行：（1）我们查阅了科学和灰色文献，以探讨欧洲国家如何管理 PCF，并对 6 个 PCF 单位进行了定性研究；（2）我们在 myhealthapps.net 存储库中对可用的应用程序进行了系统综述，以搜索 CF 管理和营养应用程序，我们对这些应用程序的特征、商业模式、下载量和可用性进行了分析。
欧洲 CF 常规护理指南在大多数欧洲国家得到认可，几乎所有国家都完全涵盖了治疗费用。CF 单位的大多数团队都是跨学科的。关于 myhealthapps.net 目录中 CF 管理和一般营养管理应用程序的系统综述，我们共审查了 12 个 CF 管理应用程序和 9 个一般营养管理应用程序。所有分析的应用程序都提供了记录与疾病和营养相关方面的功能，例如药物、膳食、测量、提醒和教育材料。在这项研究中，没有一个应用程序支持胰腺酶替代疗法。与营养应用程序相比，CF 应用程序的吸引力和可用性较低（2.66 [SD 1.15] 与 4.01 [SD 0.90]；P<.001，z 值：-2.6）。之前的研究中检测到的用户需求部分与当前 CF 管理应用程序相匹配。
PCF 的医疗保健背景为移动医疗的采用提供了独特的机会。成熟的临床指南、多样化的临床团队以及国家医疗保健系统的覆盖范围为移动医疗解决方案的使用提供了合适的场景。然而，用于 CF 自我管理的现有应用程序并未涵盖营养和教育等基本方面。为了提高 CF 自我管理中移动医疗的采用率，新应用程序应包含这些功能。
国际注册报告标识符（IRRID）：RR2-10.1136/bmjopen-2016-014931。
