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失语症专家小组会议报告

Expert Group Meeting on Aphasia: A Report.

作者信息

Pauranik Apoorva, George Annamma, Sahu Aparna, Nehra Ashima, Paplikar Avanthi, Bhat Chitralekha, Krishnan Gopee, Kaur Harsimar, Saini Jitendra, Suresh P A, Ojha Pawan, Singh Pinky, Sancheti Pratap, Karanth Prathibha, Mathuranath P S, Goswami Satyapal, Chitnis Sonal, Sundar N, Alladi Suvarna, Faroqi-Shah Yasmeen

机构信息

Professor, Deaprtment of Neurology, M.G.M. Medical College, Indore, Madhya Pradesh, India.

Speech Language Pathologist, Trivandrum, Kerala, India.

出版信息

Ann Indian Acad Neurol. 2019 Apr-Jun;22(2):137-146. doi: 10.4103/aian.AIAN_330_18.

DOI:10.4103/aian.AIAN_330_18
PMID:31007423
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6472241/
Abstract

A multidisciplinary team of experts took stock of the current state of affairs about many aspects of aphasia in India, including community burden, diagnostic assessment, therapy, rehabilitation, research, education, and advocacy. The broad spectrum of aphasiology was matched by the types of participants ranging from neurologists, speech-language pathologists, clinical psychologists, linguists, to experts in neuroimaging and computer sciences. Threadbare discussion in 16 sessions over 3 days leads to the identification of pressing problems and possible solutions. Many action plans have been envisaged and recommendations made. A few examples with high priority are community-based and hospital-based study incidence and prevalence of aphasia, development of test batteries for the assessment of many components of speech and communication in Indian languages which are validated on rigorous psychometric, and linguistic criteria, national registry for aphasia, educational modules about aphasia for different target groups, resources for advocacy and its training, a bank of research questions and outlines of research protocols for young professionals to pursue. The expert group will continue to oversee execution of some of the actionable plans in short and long term.

摘要

一个多学科专家团队评估了印度失语症诸多方面的现状,包括社区负担、诊断评估、治疗、康复、研究、教育及宣传。参与者类型广泛,涵盖神经科医生、言语语言病理学家、临床心理学家、语言学家以及神经影像学和计算机科学专家,与失语症学的广泛领域相匹配。在3天内进行的16场深入讨论,确定了紧迫问题及可能的解决方案。现已设想了许多行动计划并提出了建议。几个高度优先的例子包括基于社区和医院的失语症发病率和患病率研究、开发用于评估印度语言中言语和交流多个组成部分的测试组,这些测试组需根据严格的心理测量和语言标准进行验证、建立全国失语症登记处、为不同目标群体制定关于失语症的教育模块、宣传资源及其培训、一系列研究问题以及供年轻专业人员遵循的研究方案大纲。专家小组将继续在短期和长期内监督一些可执行计划的实施。

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本文引用的文献

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Cognitive functioning in chronic post-stroke aphasia.慢性中风后失语症中的认知功能
Appl Neuropsychol Adult. 2019 Jul-Aug;26(4):355-364. doi: 10.1080/23279095.2018.1429442. Epub 2018 Feb 12.
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"It's not really worth my while": understanding contextual factors contributing to decisions to participate in community aphasia groups.“这真的不值得我去做”:理解导致参与社区失语症小组的决策的背景因素。
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Music therapy for mental disorder and mental health: the untapped potential of Indian classical music.针对精神障碍和心理健康的音乐疗法:印度古典音乐尚未开发的潜力。
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Short Version of the Bilingual Aphasia Test in Malayalam.马拉雅拉姆语双语失语症测试简版
Ann Indian Acad Neurol. 2017 Jul-Sep;20(3):217-219. doi: 10.4103/aian.AIAN_10_17.
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Communicative-Pragmatic Assessment Is Sensitive and Time-Effective in Measuring the Outcome of Aphasia Therapy.交际-语用评估在衡量失语症治疗效果方面具有敏感性且省时高效。
Front Hum Neurosci. 2017 May 19;11:223. doi: 10.3389/fnhum.2017.00223. eCollection 2017.
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High-technology augmentative communication for adults with post-stroke aphasia: a systematic review.脑卒中后失语症成人的高科技辅助沟通:系统评价。
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Intensive speech and language therapy in patients with chronic aphasia after stroke: a randomised, open-label, blinded-endpoint, controlled trial in a health-care setting.在脑卒中后慢性失语症患者中进行强化语言治疗:一项在医疗保健环境中进行的随机、开放标签、盲终点、对照试验。
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