中国广东省社区麻风病影响人群的心理健康与生活质量的关系：一项横断面研究。
Relationship between psychological health and quality of life of people affected by leprosy in the community in Guangdong province, China: a cross-sectional study.
机构信息
Leprosy Control Department, Dermatology Hospital of Southern Medical University, Guangdong Province, Guangzhou, China.
Leprosy Control Department, Guangdong Provincial Center for Skin Disease and STI Control, Guangdong Province, Guangzhou, China.
出版信息
BMC Public Health. 2019 Apr 23;19(1):424. doi: 10.1186/s12889-019-6672-x.
BACKGROUND
This paper investigates the relationship between psychological health and quality of life (QOL) of people affected by leprosy (PAL) living in a community in Guangdong province, China.
METHODS
A population-based cross-sectional survey was conducted from April to October 2016 in Guangdong province, China. The 12-item general health questionnaire (GHQ12) and World Health Organization Quality of life-BREF (WHOQOL-BREF) were used to evaluate the psychological health and QOL of the participants. PAL recruited for this study included those who were (1) registered in LEPMIS by the end of 2015 and living in the community, (2) able to be contacted by investigators, and (3) willing to provide informed written consent for enrolling in the study. Proportions, medians, and ratios were used to describe the demographics of the participants and χ2 test was used to compare groups with different psychological health states. Pearson's correlation coefficient and logistic regression analyses were used to assess the relationship between GHQ12 and QOL score.
RESULTS
A total of 7230 PAL (5527 males and 1701 females, average age 67.3 ± 13.1 years) living in the community participated in the study. The participants averaged 1.7 ± 2.7 points on the GHQ12. Of these, 23.5% had scores meeting a psychological disorder (≥3 points). The scores for the physical, psychological, and social relationships, and environment dimensions of QOL were 17.2 ± 2.4, 20.6 ± 2.7, 9.7 ± 1.7, and 24.6 ± 4.0, respectively. Gender, age, employment, profession, and the four dimensions of QOL were independent factors associated with psychological health of PAL.
CONCLUSION
In addition to focusing on the factors associated with poor QOL and psychological health amongst PAL, there is an urgent need for stigma reduction, rehabilitation programs and social integration. This may be achieved by engaging community members together with PAL to design a locally tailored intervention program.
背景
本研究旨在调查中国广东省某社区麻风病愈者（PAL）的心理健康与生活质量（QOL）之间的关系。
方法
本研究为基于人群的横断面调查，于 2016 年 4 月至 10 月在中国广东省进行。采用 12 项一般健康问卷（GHQ12）和世界卫生组织生活质量简表（WHOQOL-BREF）评估参与者的心理健康和 QOL。本研究纳入的 PAL 患者须符合以下标准：（1）于 2015 年底前在 LEPMIS 登记，并居住在社区内；（2）能被调查员联系到；（3）愿意签署知情同意书，参加本研究。采用比例、中位数和比值描述参与者的人口统计学特征，并采用 χ2 检验比较不同心理健康状态的组间差异。采用 Pearson 相关系数和 logistic 回归分析评估 GHQ12 与 QOL 评分之间的关系。
结果
共有 7230 名 PAL（男 5527 名，女 1701 名，平均年龄 67.3±13.1 岁）参与了本研究。参与者的 GHQ12 平均得分为 1.7±2.7 分，其中 23.5%的得分达到心理障碍（≥3 分）。QOL 的生理、心理、社会关系和环境维度的平均得分为 17.2±2.4、20.6±2.7、9.7±1.7 和 24.6±4.0。性别、年龄、就业、职业和 QOL 的四个维度是 PAL 心理健康的独立影响因素。
结论
除了关注与 PAL 的 QOL 和心理健康不良相关的因素外，还迫切需要减少耻辱感、康复计划和社会融合。这可以通过让社区成员与 PAL 一起设计一个适合当地情况的干预计划来实现。
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