Achdiat Pati Aji, Ariyanto Eko Fuji, Simanjuntak Michael Nobel
Department of Dermatology and Venereology, Faculty of Medicine, Universitas Padjadjaran-Dr. Hasan Sadikin General Hospital, Bandung 40161, West Java, Indonesia.
Division of Biochemistry and Molecular Biology, Department of Biomedical Sciences, Faculty of Medicine, Universitas Padjadjaran, Bandung 40161, West Java, Indonesia.
Dermatol Res Pract. 2021 Nov 9;2021:5519608. doi: 10.1155/2021/5519608. eCollection 2021.
Leprosy is a chronic infectious disease for which effective therapy has been long since invented. Thus, the morbidity has been decreased as technology has advanced, but the permanent disability has continuously generated stigma for centuries. The stigma causes the emergence of a poor psychological impact on people with leprosy (PwL). These impacts make new PwL reluctant to get appropriate therapy for their initial symptoms and are, thus, troublesome in accomplishing the goals of the leprosy elimination program. The aim of this review is to provide the history of psychological impact amongst PwL in countries across the globe.
This is a literature review study. A keyword-based search was conducted in digital libraries. Articles reporting on PwL's psychology and related issues, such as quality of life, opportunity of building a marriage, and getting hired, were included. The data were presented based on a leprosy history timeline with cutoff points, namely, the invention of promin (1941) and multidrug treatment (1970).
In total, 38 studies were included in this review. These studies showed that PwL's knowledge towards leprosy has been increasing; nevertheless, their attitude is still lacking. The emotional response was described by various negative feelings that had persistently occurred. These poor psychological impacts were followed by poor treatment-seeking behavior and resulted in low quality of life.
From year to year, the PwL's knowledge about leprosy has been getting better; nevertheless, their attitude towards the disease is still poor. The emotional response, social participation, and quality of life of PwL are persistently poor due to the persistent stigma.
麻风病是一种慢性传染病,有效的治疗方法早已发明。因此,随着技术的进步,发病率有所下降,但几个世纪以来,永久性残疾一直带来污名。这种污名对麻风病患者造成了不良的心理影响。这些影响使新的麻风病患者不愿因初始症状而接受适当治疗,从而在实现消除麻风病计划的目标方面造成麻烦。本综述的目的是提供全球各国麻风病患者心理影响的历史。
这是一项文献综述研究。在数字图书馆中进行了基于关键词的搜索。纳入了报告麻风病患者心理及相关问题的文章,如生活质量、结婚机会和就业情况等。数据根据麻风病历史时间线及截止点呈现,即氨苯砜(1941年)和联合化疗(1970年)的发明。
本综述共纳入38项研究。这些研究表明,麻风病患者对麻风病的认识有所提高;然而,他们的态度仍有欠缺。情绪反应表现为持续出现的各种负面情绪。这些不良的心理影响导致就医行为不佳,进而导致生活质量低下。
年复一年,麻风病患者对麻风病的认识有所改善;然而,他们对该病的态度仍然很差。由于污名持续存在,麻风病患者的情绪反应、社会参与和生活质量一直很差。