印度南部一个麻风病专门护理中心的麻风病患者的生活质量和心理健康状况。

Quality of life and mental health status of hansen disease patients, attending a designated leprosy care center in South-India.

机构信息

Department of Community Medicine, Shimoga Institute of Medical Sciences, Shivamogga, Karnataka, India.

Department of Community Medicine, SDM College of Medical Sciences and Hospital, Shri Dharmasthala Manjunatheshwara Unoversity, Dharwad, Karnataka, India.

出版信息

Int J Mycobacteriol. 2021 Jan-Mar;10(1):31-36. doi: 10.4103/ijmy.ijmy_214_20.

DOI:10.4103/ijmy.ijmy_214_20

PMID:33707369

Abstract

BACKGROUND

"Quality of life (QOL)" is relatively a new concept, which originates from the World Health Organization (WHO) "health" definition. The WHO defines "health" as a state of complete physical, mental, and social well-being and not merely an absence of disease or infirmity. It introduces a word, "well-being," which has two components, one the objective component and the second subjective component. The objective component mainly includes all the material possession by an individual, whereas the subjective component includes the perception of health by an individual, i.e., "QoL." It has been observed that most of the persons affected by Hansen's Disease (leprosy) have good economic conditions, but they continue to suffer from social, psychological, and physical problems which makes their life miserable. Hence, an attempt has been made to assess their QOL and factors determining them.

METHOD

A convenient sampling technique was used and 114 persons affected with Hansen's disease were studied. The study was conducted for a period of 1 year from November 2012 to October 2013. QOL was assessed using the WHO QOL-BREF Questionnaire and mental health status by the Self-Reporting Questionnaire. The results were obtained using SPSS 17.0 software, statistical tests such as Chi-square test, ANOVA, and standard multiple logistic regression analysis were used.

RESULTS

Quality of leprosy patients was poor. The mean WHOQOL-BREF total score was below average (mean score <65). Physical QOL of leprosy was more affected in females (mean WHOQOL-BREF score = 20.80). Mental distress was more prevalent in males (74.6%) compared to females (25.4%). Presence of deformities, female sex of the patient, and advanced age of the patient showed the greatest association with adverse QOL.

CONCLUSION

Presence of physical disabilities or deformities and advanced age of leprosy patients adversely affect QOL of leprosy patients, whereas low level of education and poor socioeconomic status do not have a significant effect on QOL.

摘要

背景

“生活质量（QOL）”是一个相对较新的概念，它源自世界卫生组织（WHO）的“健康”定义。WHO 将“健康”定义为身体、心理和社会福祉的完全状态，而不仅仅是没有疾病或虚弱。它引入了一个词，“福祉”，它有两个组成部分，一个是客观组成部分，另一个是主观组成部分。客观组成部分主要包括个人的所有物质财富，而主观组成部分包括个人对健康的感知，即“QOL”。人们观察到，大多数受麻风病（麻风病）影响的人都有良好的经济条件，但他们仍然面临社会、心理和身体问题，这使他们的生活痛苦不堪。因此，人们试图评估他们的生活质量及其决定因素。

方法

采用方便抽样技术，对 114 名麻风病患者进行了研究。这项研究从 2012 年 11 月至 2013 年 10 月进行了一年。使用 WHOQOL-BREF 问卷评估生活质量，使用自我报告问卷评估心理健康状况。结果使用 SPSS 17.0 软件获得，使用卡方检验、方差分析和标准多逻辑回归分析等统计检验。

结果

麻风病患者的生活质量较差。WHOQOL-BREF 总分平均值低于平均水平（平均得分<65）。女性的麻风病患者身体生活质量受影响更大（WHOQOL-BREF 平均得分=20.80）。与女性（25.4%）相比，男性的精神困扰更为普遍（74.6%）。存在畸形、患者为女性和患者年龄较大与不良 QOL 关联最大。