Dew Angela, Collings Susan, Dowse Leanne, Meltzer Ariella, Smith Louisa
UNSW Sydney, Australia.
The University of Sydney, Australia.
J Intellect Disabil. 2019 Sep;23(3):344-358. doi: 10.1177/1744629519843012. Epub 2019 Apr 24.
This article reports on the peer support experiences of mothers with a son or daughter with intellectual disability and challenging behaviour. Engagement in parent peer support programs can improve family quality of life and may have multifaceted benefits at the interpersonal, intra-individual self-change and sociopolitical levels. Thirteen mothers were interviewed about their experiences of participating in a parent peer support program. Thematic analysis focused on the process elements of the program that contributed to its effectiveness in providing support to parents. There were three process-related themes: the role of a paid coordinator, diversity of engagement strategies and matching of peer support partners. Mothers appreciated the opportunities provided to engage in a range of strategies tailored to individual preferences, time and capacity constraints, supported by the paid coordinator. One-to-one peer support proved difficult to sustain given the challenges mothers faced in their day-to-day lives.
本文报道了有智力残疾且行为具有挑战性的子女的母亲们的同伴支持经历。参与家长同伴支持项目可以提高家庭生活质量，并且可能在人际、个体内部自我改变和社会政治层面带来多方面的益处。对13位母亲进行了访谈，了解她们参与家长同伴支持项目的经历。主题分析聚焦于该项目中有助于其有效为家长提供支持的过程要素。有三个与过程相关的主题：付费协调员的角色、参与策略的多样性以及同伴支持伙伴的匹配。母亲们对所提供的机会表示感激，这些机会使她们能够在付费协调员的支持下，采用一系列根据个人偏好、时间和能力限制量身定制的策略。鉴于母亲们在日常生活中面临的挑战，一对一的同伴支持难以持续。
