Tranzo, Tilburg School of Social and Behavioral Sciences, Tilburg University, Tilburg, The Netherlands.
Institute of Health & Wellbeing, University of Glasgow, Glasgow, UK.
J Intellect Disabil Res. 2021 Aug;65(8):760-771. doi: 10.1111/jir.12859. Epub 2021 Jun 2.
During the first COVID-19 lockdown period, various restrictions led to diminished access to both educational and professional support systems for children with an intellectual disability and their families. The aim of this study was to explore the experiences and needs of parents caring for a child with an intellectual disability during the first lockdown period in the Netherlands.
Five mothers caring for a child with an intellectual disability participated in this qualitative study. The participants were interviewed using a semi-structured interview guide. The interviews lasted between 26 and 48 min. The interview recordings were transcribed verbatim, and the transcripts were analysed thematically.
Three overarching themes emerged: (1) We need to stay healthy, which centres on the mother's urge to protect their child's well-being; (2) We make it work, which provides insight into how the mothers were handling the drastic changes in their family; and (3) My child's and family's place in the world, which focuses on the mothers' experienced position in the world around them.
The current study provides valuable insights into the experiences and needs of mothers caring for a child with an intellectual disability during the COVID-19 pandemic.
在 COVID-19 第一次封锁期间，各种限制导致智障儿童及其家庭在接受教育和专业支持方面的机会减少。本研究旨在探讨荷兰第一次封锁期间智障儿童父母的经历和需求。
本研究采用定性研究方法，邀请了 5 位智障儿童的母亲参与。使用半结构化访谈指南对参与者进行访谈。访谈时长为 26 至 48 分钟。访谈录音逐字转录，并进行主题分析。
研究结果主要有 3 个主题：（1）我们需要保持健康，这是母亲保护孩子福祉的核心；（2）我们努力应对，这反映了母亲们如何应对家庭的巨大变化；（3）孩子和家庭在世界上的位置，主要是母亲在周围世界中所经历的位置。
本研究深入了解了 COVID-19 大流行期间智障儿童父母的经历和需求。
