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急性哮喘住院期间对护理人员的访谈。

Interviews with caregivers during acute asthma hospitalisations.

机构信息

Department of Nursing, Auburn University School of Nursing, Auburn, Alabama, USA.

Professor Emerita, UCF College of Nursing, University of Central Florida College of Nursing, Orlando, Florida, USA.

出版信息

J Asthma. 2020 Jul;57(7):778-786. doi: 10.1080/02770903.2019.1602875. Epub 2019 Apr 26.

Abstract

Childhood asthma is complex and poor management of childhood asthma is the leading health reason for pediatric emergency department visits, hospitalizations and missed school days for school-aged children. The purpose of this study was to explore caregiver perceptions of home management of childhood asthma in school-aged children who have been hospitalized for asthma. Using qualitative descriptive design with in-depth interviews, we aimed to explore family caregiver perceptions of managing asthma in school-aged children between 5 and 12 years of age. Data were collected from 17 participants; however, two transcripts were incomplete due to interruption in interview from medical team. The sample consisted of 15 families with child age mean of 8 years, and diagnosed with asthma at 2 years and 8 months. Four experts with asthma and research design analyzed all transcripts and six clear themes emerged. These themes included family or caregiver burden, care coordination, certainty or uncertainty continuum, effort to control, sign or symptom recognition, and trigger recognition. In this article, we defined each theme and identify specific statements from families on daily life when affected by childhood asthma. The findings of this study confirm and extend results from other studies of caregivers who have school-aged children diagnosed with asthma. This study found that families play a vital role in management of asthma on a daily basis and families often assess the overall management of asthma by all child relations throughout the day. Clinical implications are highlighted within each theme.

摘要

儿童哮喘较为复杂,如果儿童哮喘管理不善,将成为导致儿科急诊就诊、住院和学龄儿童缺课的主要健康原因。本研究旨在探讨曾因哮喘住院的学龄儿童的照顾者对其家庭哮喘管理的看法。我们采用定性描述设计和深入访谈,旨在探讨 5 至 12 岁学龄儿童家庭照顾者对管理儿童哮喘的看法。从 17 名参与者中收集了数据;但是,由于医疗团队的中断,有两份记录不完整。该样本由 15 个家庭组成,其孩子的平均年龄为 8 岁,在 2 岁零 8 个月时被诊断患有哮喘。有 4 位哮喘和研究设计方面的专家分析了所有转录本,出现了 6 个清晰的主题。这些主题包括家庭或照顾者的负担、护理协调、确定性或不确定性连续体、努力控制、迹象或症状识别以及触发因素识别。在本文中,我们定义了每个主题,并从受儿童哮喘影响的家庭日常生活中确定了具体的陈述。这项研究的结果证实并扩展了其他研究对有学龄儿童被诊断患有哮喘的照顾者的研究结果。本研究发现,家庭在日常管理哮喘方面发挥着重要作用,家庭通常会通过全天与孩子有关的所有关系来评估哮喘的整体管理情况。在每个主题中都强调了临床意义。

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