Key Laboratory of Health Economics and Policy, School of Health Care Management, National Health Commission, Shandong University, Jinan, China.
Department of Public Health Sciences, University of Virginia, Charlottesville, Virginia.
Cancer. 2019 Sep 1;125(17):3068-3078. doi: 10.1002/cncr.32164. Epub 2019 May 8.
China accounts for approximately 27% of global cancer deaths. However, to the authors' knowledge, the lasting effects of cancer and cancer treatments on patients have not been investigated in China. The authors developed a questionnaire, the China Survey of Experiences with Cancer, for Chinese cancer survivors. This article introduces the study design and domains covered in the questionnaire.
The Cancer Survivorship Supplement of the Medical Expenditure Panel Survey (MEPS) was used as a reference to develop the questionnaire. The final in-person surveys were conducted in 2015 and 2016. Samples were chosen through multistage sampling. The authors described the characteristics of the study participants and their cancer experiences.
At the time of last follow-up, a total of 1166 patients had completed at least 1 component of the survey. Approximately 59% of the cancer survivors were aged ≥60 years. Greater than one-half of the participants had an elementary education level or less (51%) and a yearly family income of <$3174. Chinese cancer survivors were more likely to retire earlier than planned compared with American cancer survivors (37% vs 9%). The majority of Chinese cancer survivors (84%) reported that their work abilities were hindered by their cancer or cancer treatments. Approximately one-half of patients in China had to incur debt because of cancer, whereas <10% of patients in the United States reported having incurred debt.
The survey provides information regarding the burden of cancer in China that to the authors' knowledge currently is unavailable from other sources, including medical care use, financial impacts, employment patterns, and life experience after a cancer diagnosis for survivors and their families.
中国约占全球癌症死亡人数的 27%。然而，据作者所知，癌症及其治疗对患者的长期影响尚未在中国进行调查。作者开发了一种问卷，即《中国癌症患者经历调查》，用于中国癌症幸存者。本文介绍了问卷的研究设计和涵盖的领域。
参考《医疗支出面板调查（MEPS）癌症生存补充调查》开发问卷。最终的入户调查于 2015 年和 2016 年进行。采用多阶段抽样选择样本。作者描述了研究参与者的特征及其癌症经历。
截至最后一次随访时，共有 1166 名患者完成了调查的至少 1 个部分。大约 59%的癌症幸存者年龄≥60 岁。超过一半的参与者受教育程度较低（51%），年收入<3174 美元。与美国癌症幸存者相比，中国癌症幸存者提前退休的可能性更大（37%比 9%）。大多数中国癌症幸存者（84%）报告说，癌症或癌症治疗影响了他们的工作能力。约有一半的中国患者因癌症而负债，而美国患者中报告有债务的不到 10%。
该调查提供了有关中国癌症负担的信息，据作者所知，这些信息目前无法从其他来源获得，包括医疗保健利用、经济影响、就业模式以及癌症诊断后幸存者及其家庭的生活经历。
