Caldeira Sílvia, Romeiro Joana, Martins Helga, Casaleiro Tiago
Centre for Interdisciplinary Research in Health, Institute of Health Sciences, Universidade Católica Portuguesa, Lisbon, Portugal.
Institute of Health Sciences, Universidade Católica Portuguesa, Lisbon, Portugal.
Nurs Forum. 2019 Oct;54(4):488-491. doi: 10.1111/nuf.12356. Epub 2019 May 31.
Healthcare is moving from a biomedical paradigm into a holistic paradigm, which includes all dimensions and needs of patients and families. Health conditions may trigger a spiritual journey for believers or non-believers bringing to light the nature of the human being and its vulnerable condition. Healthcare professionals are full participants in this life and health scenario and have an unquestionable duty related to the provision of spiritual care, on the basis of legislation, ethical codes, and on research evidence. Researchers are seizing better and broader knowledge about spirituality in healthcare, and research about this phenomenon is growing internationally. But, spirituality is considered complex, an area of intimacy and deep subjective meaning. These factors may raise some ethical concerns when submitting research projects to the ethics committees. In this paper, the authors share their experience in research about spirituality in the beginning of life issues/infertility and with adults with severe health conditions, and describe participants' perspectives on research engagement.
医疗保健正在从生物医学范式转向整体范式，这种范式涵盖了患者及其家庭的所有方面和需求。健康状况可能会引发信徒或非信徒的精神之旅，揭示人类的本质及其脆弱状况。医疗保健专业人员是这一生命与健康场景的全面参与者，基于法律、道德规范和研究证据，他们在提供精神关怀方面负有不容置疑的责任。研究人员正在获取关于医疗保健中灵性的更丰富、更广泛的知识，并且关于这一现象的研究在国际上不断增加。但是，灵性被认为是复杂的，是一个涉及亲密关系和深刻主观意义的领域。在将研究项目提交给伦理委员会时，这些因素可能会引发一些伦理问题。在本文中，作者分享了他们在生命起始问题/不孕症以及患有严重健康状况的成年人的灵性研究方面的经验，并描述了参与者对参与研究的看法。
