部分强直性肌营养不良患者的特定医疗接触总结
Summary of Selected Healthcare Encounters among a Selection of Patients with Myotonic Muscular Dystrophy.
作者信息
Bennett Kevin J, Mann Joshua R, Ouyang Lijing
机构信息
From the Department of Family and Preventive Medicine, University of South Carolina, Columbia, the Department of Preventive Medicine, University of Mississippi Medical Center School of Medicine and John D. Bower School of Population Health, Jackson, and the National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia.
出版信息
South Med J. 2019 Jun;112(6):349-354. doi: 10.14423/SMJ.0000000000000987.
OBJECTIVE
Research has not examined the use of health care by patients with myotonic muscular dystrophy (MMD), but it would provide insights into this population, which is prone to comorbidities and high service needs. This study is an analysis of this understudied subgroup, using a unique linked dataset to examine the characteristics and healthcare utilization patterns for people with MMD.
METHODS
This analysis used 3 South Carolina datasets (2009-2014). The subjects included individuals with at least 1 encounter with an code of 359.21. The variables included sex, race, visit type, payer, and diagnoses. The analyses examined characteristics and number of encounters.
RESULTS
The subjects were predominately female, white, and 45 to 64 years old. A total of 44.6% of the study population had at least 1 inpatient visit, whereas 64.2% had at least 1 emergency department visit. A majority of the subjects had at least 1 office visit (55.0%), and most (85.3%) did not have a home health encounter.
CONCLUSIONS
Investigation of the reasons for these inpatient and emergency department encounters may be helpful in identifying ways to deliver high-quality care.
目的
此前的研究尚未对强直性肌营养不良（MMD）患者的医疗保健使用情况进行调查，但这将有助于深入了解这一易患合并症且医疗服务需求较高的人群。本研究通过使用一个独特的关联数据集来分析这一研究较少的亚组，以研究MMD患者的特征和医疗保健利用模式。
方法
本分析使用了南卡罗来纳州的3个数据集（2009 - 2014年）。研究对象包括至少有一次诊断代码为359.21的个体。变量包括性别、种族、就诊类型、付款方和诊断结果。分析考察了研究对象的特征和就诊次数。
结果
研究对象以女性、白人和45至64岁人群为主。共有44.6%的研究人群至少有一次住院就诊，而64.2%的人至少有一次急诊就诊。大多数研究对象至少有一次门诊就诊（55.0%），且大多数（85.3%）没有接受过家庭医疗服务。
结论
调查这些住院和急诊就诊的原因可能有助于确定提供高质量护理的方法。
Zotero 插件