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Ethics of inclusion: Cultivate trust in precision medicine.

作者信息

Lee Sandra Soo-Jin, Fullerton Stephanie M, Saperstein Aliya, Shim Janet K

机构信息

Division of Ethics, Department of Medical Humanities and Ethics, Columbia University, New York, NY, USA.

Department of Bioethics and Humanities, University of Washington, Seattle, WA, USA.

出版信息

Science. 2019 Jun 7;364(6444):941-942. doi: 10.1126/science.aaw8299.

DOI:10.1126/science.aaw8299
PMID:31171685
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7261394/
Abstract
摘要

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本文引用的文献

1
ASHG Denounces Attempts to Link Genetics and Racial Supremacy.美国人类遗传学会谴责将遗传学与种族优越论联系起来的企图。
Am J Hum Genet. 2018 Nov 1;103(5):636. doi: 10.1016/j.ajhg.2018.10.011. Epub 2018 Oct 19.
2
Enhancing diversity to reduce health information disparities and build an evidence base for genomic medicine.增强多样性以减少健康信息差距并为基因组医学建立证据基础。
Per Med. 2018 Sep;15(5):403-412. doi: 10.2217/pme-2018-0037. Epub 2018 Sep 13.
3
Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research.超越同意：在精准医学研究中与不同人群建立信任关系。
Am J Bioeth. 2018 Apr;18(4):3-20. doi: 10.1080/15265161.2018.1431322.
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Genomics is failing on diversity.基因组学在多样性方面表现不佳。
Nature. 2016 Oct 13;538(7624):161-164. doi: 10.1038/538161a.
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Race and ancestry in the age of inclusion: technique and meaning in post-genomic science.包容时代的种族与血统：后基因组科学中的技术与意义
J Health Soc Behav. 2014 Dec;55(4):504-18. doi: 10.1177/0022146514555224. Epub 2014 Nov 6.
6
Genetic ancestry, social classification, and racial inequalities in blood pressure in Southeastern Puerto Rico.波多黎各东南部的遗传血统、社会分类和血压的种族不平等。
PLoS One. 2009 Sep 9;4(9):e6821. doi: 10.1371/journal.pone.0006821.
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Genetics. The illusive gold standard in genetic ancestry testing.遗传学。基因血统检测中难以捉摸的金标准。
Science. 2009 Jul 3;325(5936):38-9. doi: 10.1126/science.1173038.
8
Using "socially assigned race" to probe white advantages in health status.使用“社会赋予的种族”来探究白人在健康状况方面的优势。
Ethn Dis. 2008 Autumn;18(4):496-504.
9
The use of race variables in genetic studies of complex traits and the goal of reducing health disparities: a transdisciplinary perspective.复杂性状基因研究中种族变量的使用与减少健康差距的目标：跨学科视角
Am Psychol. 2005 Jan;60(1):77-103. doi: 10.1037/0003-066X.60.1.77.