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一种用于分析拼贴画的半自动化方法,旨在为西班牙裔痴呆症护理人员的家庭健康信息管理系统设计提供信息。

A semi-automated approach for analyzing collages to inform the design of a family health information management system for Hispanic dementia caregivers.

机构信息

Department of Biomedical Informatics, Columbia University, New York, NY, United States.

Columbia University Libraries, New York, NY, United States.

出版信息

J Biomed Inform. 2019 Jul;95:103225. doi: 10.1016/j.jbi.2019.103225. Epub 2019 Jun 10.

Abstract

Culturally- and linguistically-tailored health communication is needed for vulnerable populations to manage their health and the health of their families. This presents a significant design challenge. The use of collages is an increasingly popular technique with the flexibility to capture the needs and experiences of individuals with various cultural and language preferences. Collage analysis has typically remained qualitative in nature. We introduce a novel, objective, semi-automated approach that enhances collage analysis to elucidate pattern differences that may not be detectable by natural perception. We present a case scenario of collage analysis based on the expressed experience and self-management needs of Hispanic dementia caregivers (n = 24). We demonstrate how our innovative approach may reveal cultural differences between language groups that could have otherwise been missed using traditional techniques.

摘要

需要为弱势群体提供文化和语言适应的健康传播,以管理他们自己和家人的健康。这提出了一个重大的设计挑战。拼贴画的使用是一种越来越流行的技术,具有灵活性,可以捕捉具有各种文化和语言偏好的个人的需求和经验。拼贴画分析通常仍然是定性的。我们引入了一种新颖的、客观的、半自动的方法,增强了拼贴画分析,以阐明可能无法通过自然感知检测到的模式差异。我们提出了一个基于西班牙裔痴呆症护理者表达的经验和自我管理需求的拼贴画分析案例情景(n=24)。我们展示了我们的创新方法如何揭示语言群体之间的文化差异,如果使用传统技术,这些差异可能会被忽略。

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Information, communication, and online tool needs of Hispanic family caregivers of individuals with Alzheimer's disease and related dementias.
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